亲属对于向患者告知阿尔茨海默病诊断结果的态度。
Relatives' attitudes towards informing patients about the diagnosis of Alzheimer's disease.
作者信息
Pucci E, Belardinelli N, Borsetti G, Giuliani G
机构信息
Institute for Diseases of the Nervous System, University of Ancona, Ancona, Italy.
出版信息
J Med Ethics. 2003 Feb;29(1):51-4. doi: 10.1136/jme.29.1.51.
OBJECTIVES
To evaluate relatives' attitudes towards informing patients with Alzheimer's disease (AD) about their diagnosis.
SETTING
A university hospital in Italy.
METHODS
The closest relatives of each of 71 subjects diagnosed for the first time as having AD were interviewed, using a semistructured questionnaire. Spontaneous requests by relatives not to communicate issues concerning the diagnosis were also recorded.
RESULTS
Forty three (60.6%) relatives spontaneously requested that patients not be fully informed. After being interviewed, nobody thought that the patient should be given all the information. Justifications were related to the fear of the onset or worsening of depressive symptoms in the patient.
CONCLUSIONS
In Italy relatives' opposition to informing AD patients appears to be common. Knowledge of the relatives' attitudes may be useful for clinicians but disclosure of diagnosis should be based on the clinical evaluation of the patient and on a prudent evaluation of the relationship between the patient and her/his relative caregiver.
目的
评估亲属对于告知阿尔茨海默病（AD）患者其诊断结果的态度。
地点
意大利的一家大学医院。
方法
使用半结构化问卷对71名首次被诊断为患有AD的患者的近亲进行访谈。还记录了亲属自发提出的不传达有关诊断问题的请求。
结果
43名（60.6%）亲属自发要求不要让患者完全知情。在接受访谈后，没有人认为应该向患者提供所有信息。理由与担心患者出现或加重抑郁症状有关。
结论
在意大利，亲属反对告知AD患者似乎很常见。了解亲属的态度可能对临床医生有用，但诊断的披露应基于对患者的临床评估以及对患者与其亲属照顾者之间关系的审慎评估。
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