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本文引用的文献

1
Alzheimer's disease diagnosis disclosure in Brazil: a survey of specialized physicians' current practice and attitudes.巴西阿尔茨海默病诊断结果的披露:对专科医生当前实践和态度的调查。
Int Psychogeriatr. 2008 Jun;20(3):471-81. doi: 10.1017/S1041610207005819. Epub 2007 Sep 6.
2
[Alzheimer's disease as viewed by relatives of patients at public and private clinics].[公立和私立诊所中患者亲属眼中的阿尔茨海默病]
Rev Assoc Med Bras (1992). 2006 May-Jun;52(3):148-52. doi: 10.1590/s0104-42302006000300014. Epub 2006 Jul 10.
3
Do older adults presenting with memory complaints wish to be told if later diagnosed with Alzheimer's disease?出现记忆问题的老年人希望在后来被诊断出患有阿尔茨海默病时被告知吗?
Int J Geriatr Psychiatry. 2006 May;21(5):419-25. doi: 10.1002/gps.1485.
4
Global prevalence of dementia: a Delphi consensus study.痴呆症的全球患病率:一项德尔菲共识研究。
Lancet. 2005 Dec 17;366(9503):2112-7. doi: 10.1016/S0140-6736(05)67889-0.
5
Family members favor disclosing the diagnosis of Alzheimer's disease.家庭成员倾向于披露阿尔茨海默病的诊断结果。
Int Psychogeriatr. 2005 Dec;17(4):679-88. doi: 10.1017/S1041610205001675. Epub 2005 Sep 27.
6
Anxiety and depression in family caregivers of people with Alzheimer disease: the LASER-AD study.阿尔茨海默病患者家庭照料者的焦虑与抑郁:LASER-AD研究
Am J Geriatr Psychiatry. 2005 Sep;13(9):795-801. doi: 10.1176/appi.ajgp.13.9.795.
7
Disclosure of diagnosis of Alzheimer's disease in French general practice.法国全科医疗中阿尔茨海默病诊断的披露。
Am J Alzheimers Dis Other Demen. 2005 Jul-Aug;20(4):228-32. doi: 10.1177/153331750502000404.
8
Advance directives for truth disclosure.关于真相披露的预先指示。
Chest. 2005 Aug;128(2):1037-9. doi: 10.1378/chest.128.2.1037.
9
Mortality from dementia in a community-dwelling Brazilian population.巴西社区居住人群中痴呆症导致的死亡率。
Int J Geriatr Psychiatry. 2005 Mar;20(3):247-53. doi: 10.1002/gps.1274.
10
Incidence of dementia in a community-dwelling Brazilian population.巴西社区居住人群中痴呆症的发病率。
Alzheimer Dis Assoc Disord. 2004 Oct-Dec;18(4):241-6.

阿尔茨海默病的诊断披露:综述

Diagnostic disclosure in Alzheimer's Disease: A review.

作者信息

Raicher Irina, Caramelli Paulo

机构信息

Division of Neurology of the Hospital das Clínicas, University of São Paulo School of Medicine, São Paulo, Brazil.

Behavioral and Cognitive Neurology Research Group, Department of Internal Medicine, Faculty of Medicine, Federal University of Minas Gerais, Belo Horizonte, Brazil.

出版信息

Dement Neuropsychol. 2008 Oct-Dec;2(4):267-271. doi: 10.1590/S1980-57642009DN20400006.

DOI:10.1590/S1980-57642009DN20400006
PMID:29213583
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5619078/
Abstract

Although growing, the literature on research into attitudes of general and specialized physicians towards disclosing the diagnosis of dementia and Alzheimer's disease (AD), or the current practice on AD disclosure, remains limited. Moreover, information is also scarce on what caregivers, or indeed patients themselves, wish to know with regard to their diagnosis. The goal of the present article was to present a review of the current available literature on the topic of truth telling in dementia, especially in AD. The studies discussed in this review were mainly conducted in Europe, particularly in the United Kingdom, as well as the United States. Disclosure of AD diagnosis is not a common practice among physicians. In the clinical context, the discussion on diagnosis disclosure can be valuable for improving the care of AD patients and their families.

摘要

尽管相关研究在不断增加,但关于普通医生和专科医生对披露痴呆症和阿尔茨海默病(AD)诊断的态度的文献,或当前关于AD诊断披露的实践,仍然有限。此外,关于护理人员或患者自身希望了解哪些有关其诊断信息的内容也很匮乏。本文的目的是对当前关于痴呆症,尤其是AD中告知真相这一主题的现有文献进行综述。本综述中讨论的研究主要在欧洲进行,特别是在英国,以及美国。向患者披露AD诊断在医生中并非普遍做法。在临床环境中,关于诊断披露的讨论对于改善AD患者及其家人的护理可能具有重要价值。