Suppr超能文献

披露痴呆症诊断的障碍与最佳实践:一项临床医生访谈研究

Barriers and Best Practices in Disclosing a Dementia Diagnosis: A Clinician Interview Study.

作者信息

Wollney Easton N, Armstrong Melissa J, Bedenfield Noheli, Rosselli Monica, Curiel-Cid Rosie E, Kitaigorodsky Marcela, Levy Ximena, Bylund Carma L

机构信息

Department of Health Outcomes and Biomedical Informatics, University of Florida College of Medicine, Gainesville, FL, USA.

Department of Neurology, University of Florida College of Medicine, Gainesville, FL, USA.

出版信息

Health Serv Insights. 2022 Dec 5;15:11786329221141829. doi: 10.1177/11786329221141829. eCollection 2022.

Abstract

The vast majority of individuals with dementia want to receive a diagnosis. Research suggests, however, that only a fraction of individuals with dementia receive a diagnosis and patients and families often feel the information is poorly explained. We thus aimed to assess clinician-reported barriers to dementia disclosure and recommendations for giving a dementia diagnosis. To accomplish this, we performed telephone interviews with 15 clinicians from different specialties using a semi-structured interview guide. Transcripts were analyzed thematically. Clinician-reported barriers fit 3 categories: patient and caregiver-related barriers, clinician-related barriers, and barriers related to the triadic interaction. Patient and caregiver-related barriers included , and Clinician barriers included , and Triadic interaction barriers included c and Recommendations for best practice included for clinicians to foster relationships, educate patients and family, and take a family-centered approach. Clinicians described recommendations for fostering relationships such as using and . Educating patients and families included , , and . Family approaches included to delivering the diagnosis and in the discussion. Findings may inform updated recommendations for best practices when communicating a dementia diagnosis.

摘要

绝大多数痴呆症患者希望得到诊断。然而,研究表明,只有一小部分痴呆症患者得到了诊断,而且患者及其家属常常觉得所提供的信息解释得不够清楚。因此,我们旨在评估临床医生报告的痴呆症诊断披露障碍以及关于做出痴呆症诊断的建议。为实现这一目标,我们使用半结构化访谈指南对15名来自不同专业的临床医生进行了电话访谈。对访谈记录进行了主题分析。临床医生报告的障碍分为三类:与患者和照顾者相关的障碍、与临床医生相关的障碍以及与三方互动相关的障碍。与患者和照顾者相关的障碍包括……以及……临床医生相关的障碍包括……以及……三方互动障碍包括c和……最佳实践建议包括临床医生要建立良好关系、对患者和家属进行教育,并采取以家庭为中心的方法。临床医生描述了建立良好关系的建议,比如使用……和……对患者和家属进行教育包括……、……和……以家庭为中心的方法包括诊断传达方式以及讨论中的……研究结果可能为痴呆症诊断沟通时最佳实践的更新建议提供参考。

相似文献

1
Barriers and Best Practices in Disclosing a Dementia Diagnosis: A Clinician Interview Study.
Health Serv Insights. 2022 Dec 5;15:11786329221141829. doi: 10.1177/11786329221141829. eCollection 2022.
2
Clinician approaches to communicating a dementia diagnosis: An interview study.
PLoS One. 2022 Apr 14;17(4):e0267161. doi: 10.1371/journal.pone.0267161. eCollection 2022.
3
[Are schizophrenic patients being told their diagnosis today in France?].
Encephale. 2017 Apr;43(2):160-169. doi: 10.1016/j.encep.2016.01.011. Epub 2016 Jun 29.
4
The future of Cochrane Neonatal.
Early Hum Dev. 2020 Nov;150:105191. doi: 10.1016/j.earlhumdev.2020.105191. Epub 2020 Sep 12.
5
Best Practices for Communicating a Diagnosis of Dementia: Results of a Multi-Stakeholder Modified Delphi Consensus Process.
Neurol Clin Pract. 2024 Feb;14(1):e200223. doi: 10.1212/CPJ.0000000000200223. Epub 2023 Dec 20.
6
Communicating Bad News: Insights for the Design of Consumer Health Technologies.
JMIR Hum Factors. 2019 May 17;6(2):e8885. doi: 10.2196/humanfactors.8885.
10
Practice constraints, behavioral problems, and dementia care: primary care physicians' perspectives.
J Gen Intern Med. 2007 Nov;22(11):1487-92. doi: 10.1007/s11606-007-0317-y. Epub 2007 Sep 7.

引用本文的文献

1
3
Post-diagnostic support in Australia: Perspectives of people recently diagnosed with dementia and their carers.
Dementia (London). 2025 Apr 14;24(6):14713012251333880. doi: 10.1177/14713012251333880.
4
Identifying the needs of natural caregivers caring for a person with dementia: a mixed method study.
BMC Prim Care. 2025 Feb 21;26(1):48. doi: 10.1186/s12875-025-02724-1.
5
Sex Differences for Social Determinants Associated with Lewy Body Dementia Onset and Diagnosis.
Neurodegener Dis. 2025 Feb 18;25(1):1-13. doi: 10.1159/000544772.
6
Writing the Signs: An Explainable Machine Learning Approach for Alzheimer's Disease Classification from Handwriting.
Healthc Technol Lett. 2025 Feb 13;12(1):e70006. doi: 10.1049/htl2.70006. eCollection 2025 Jan-Dec.
7
Dementia Diagnosis Unawareness and Caregiver Burden in a Multi-ethnic Cohort.
J Gen Intern Med. 2025 Jan 14. doi: 10.1007/s11606-024-09333-1.
8
"…but I know something's not right here": Exploring the diagnosis and disclosure experiences of persons living with ALS.
PLoS One. 2024 Dec 2;19(12):e0301249. doi: 10.1371/journal.pone.0301249. eCollection 2024.
9
Triadic Communication in Medical Encounters Including Individuals With Dementia: A Scoping Review.
Alzheimer Dis Assoc Disord. 2024;38(2):213-225. doi: 10.1097/WAD.0000000000000626. Epub 2024 May 30.

本文引用的文献

1
Clinician approaches to communicating a dementia diagnosis: An interview study.
PLoS One. 2022 Apr 14;17(4):e0267161. doi: 10.1371/journal.pone.0267161. eCollection 2022.
2
Population estimate of people with clinical Alzheimer's disease and mild cognitive impairment in the United States (2020-2060).
Alzheimers Dement. 2021 Dec;17(12):1966-1975. doi: 10.1002/alz.12362. Epub 2021 May 27.
4
Giving and receiving a diagnosis of a progressive neurological condition: A scoping review of doctors' and patients' perspectives.
Patient Educ Couns. 2020 Sep;103(9):1709-1723. doi: 10.1016/j.pec.2020.03.023. Epub 2020 Apr 2.
5
Dementia diagnostics in general practitioner care : Do general practitioners have reservations? The findings of a qualitative study in Germany.
Wien Med Wochenschr. 2020 Jun;170(9-10):230-237. doi: 10.1007/s10354-019-00722-4. Epub 2019 Dec 6.
6
Physician Perceptions about the Barriers to Prompt Diagnosis of Mild Cognitive Impairment and Alzheimer's Disease.
Int J Alzheimers Dis. 2019 May 21;2019:3637954. doi: 10.1155/2019/3637954. eCollection 2019.
9
Saturation in qualitative research: exploring its conceptualization and operationalization.
Qual Quant. 2018;52(4):1893-1907. doi: 10.1007/s11135-017-0574-8. Epub 2017 Sep 14.
10
The process of disclosing a diagnosis of dementia and mild cognitive impairment: A national survey of specialist physicians in Denmark.
Dementia (London). 2020 Apr;19(3):547-559. doi: 10.1177/1471301218777443. Epub 2018 May 27.

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验