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遗传咨询中的确定性与不确定性:一项定性案例研究

Certainty and uncertainty in genetic counselling: a qualitative case study.

作者信息

Smith J A, Michie S, Allanson A, Elwy R

机构信息

Department of Psychology, University of Sheffield, Sheffield S10 2TN, UK.

出版信息

Psychol Health. 2000;15(1):1-12. doi: 10.1080/08870440008400284.

Abstract

This study examines the communication that occurs during routine genetic counselling sessions. It involves the qualitative analysis of nine consultations with one member of a clinical genetics team. The consultations were characterised by a contrast between the sense of certainty apparent in how the clinicians talked about the power and promise of the new genetics and the uncertainty communicated regarding the actual information produced by genetic tests and their limitations in solving people's problems. There was also a contrast between how the clinician seemed to control the format and agenda of the consultation and the apparently uncontrollable personal and social implications of the topics discussed. We speculate that this may be explained in terms of the clinician giving some order and certainty in an area of inherent uncertainty, and where great promises are as yet unrealised.

摘要

本研究考察了常规遗传咨询过程中发生的沟通情况。它涉及对与临床遗传学团队一名成员进行的九次咨询的定性分析。这些咨询的特点是,临床医生在谈论新遗传学的力量和前景时所表现出的确定性,与关于基因检测产生的实际信息及其在解决人们问题方面的局限性所传达的不确定性之间形成了对比。临床医生在咨询过程中对形式和议程的控制方式,与所讨论话题明显无法控制的个人和社会影响之间也存在对比。我们推测,这可能是因为临床医生在一个固有的不确定性领域以及尚未实现巨大承诺的领域中赋予了一定的秩序和确定性。

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