Murray Michael D, Smith Faye E, Fox Joanne, Teal Evgenia Y, Kesterson Joseph G, Stiffler Troy A, Ambuehl Roberta J, Wang Jane, Dibble Maria, Benge Dennis O, Betley Leonard J, Tierney William M, McDonald Clement J
Health Care Data & Epidemiology Section, Regenstrief Institute for Health Care, 1050 Wishard Boulevard RG-6, Indianapolis, IN 46202, USA.
J Am Med Inform Assoc. 2003 Jul-Aug;10(4):389-98. doi: 10.1197/jamia.M1252. Epub 2003 Mar 28.
The authors describe a research group that supports the needs of investigators seeking data from an electronic medical record system. Since its creation in 1972, the Regenstrief Medical Records System has captured and stored more than 350 million discrete coded observations on two million patients. This repository has become a central data source for prospective and retrospective research. It is accessed by six data analysts--working closely with the institutional review board--who provide investigators with timely and accurate data while protecting patient and provider privacy and confidentiality. From January 1, 1999, to July 31, 2002, data analysts tracked their activities involving 47,559 hours of work predominantly for physicians (54%). While data retrieval (36%) and analysis (25%) were primary activities, data analysts also actively collaborated with researchers. Primary objectives of data provided to investigators were to address disease-specific (35.4%) and drug-related (12.2%) questions, support guideline implementation (13.1%), and probe various aspects of clinical epidemiology (5.7%). Outcomes of these endeavors included 117 grants (including 300,000 US dollars per year salary support for data analysts) and 139 papers in peer-reviewed journals by investigators who rated the support provided by data analysts as extremely valuable.
作者描述了一个为寻求电子病历系统数据的研究人员提供支持的研究团队。自1972年创建以来,雷根斯特里夫医疗记录系统已收集并存储了针对200万名患者的超过3.5亿条离散编码观察数据。这个资料库已成为前瞻性和回顾性研究的核心数据源。六名数据分析师与机构审查委员会密切合作,在保护患者和医疗服务提供者隐私及保密的同时,为研究人员提供及时、准确的数据。从1999年1月1日至2002年7月31日,数据分析师记录了他们的活动,其中主要为医生工作的时间达47559小时(占54%)。虽然数据检索(36%)和分析(25%)是主要活动,但数据分析师也积极与研究人员合作。向研究人员提供数据的主要目的是解决特定疾病问题(35.4%)和药物相关问题(12.2%)、支持指南实施(13.1%)以及探究临床流行病学的各个方面(5.7%)。这些努力的成果包括117项资助(其中包括每年为数据分析师提供30万美元的薪资支持)以及研究人员在同行评审期刊上发表的139篇论文,这些研究人员将数据分析师提供的支持评为极具价值。