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对基因检测的态度:性别、角色与学科

Attitudes toward genetic testing: gender, role, and discipline.

作者信息

Harman Laurinda B

机构信息

Department of Health Information Management, College of Allied Health Professions, Temple University, Philadelphia, Pa 19140, USA.

出版信息

Top Health Inf Manage. 2003 Jan-Mar;24(1):50-8.

PMID:12674396
Abstract

As a result of the Human Genome Project, genetic testing could result in the availability of detailed genetic information (presence of disease, genetic risk or predisposition to disease, and characteristics or traits) that can ultimately be used for healthcare-related decisions. This study explored whether gender, role, and professional discipline would influence attitudes toward genetic testing when making reproductive decisions, as interpreted by 2 roles--as a parent making decisions or as a professional giving advice. An original research instrument was administered to masters and doctoral genetics students, pediatric residents, and masters-level ministry students. Statistical analyses revealed that discipline strongly influenced decision making while gender rarely did. In addition, differences in attitudes were also found based on parental and professional roles.

摘要

由于人类基因组计划,基因检测可能会提供详细的基因信息(疾病的存在、疾病的遗传风险或易感性以及特征或特质),这些信息最终可用于与医疗保健相关的决策。本研究探讨了在做出生殖决策时,性别、角色和专业学科是否会影响对基因检测的态度,这些态度通过两种角色来诠释——作为做出决策的父母或作为提供建议的专业人员。一份原创研究工具被应用于遗传学硕士和博士研究生、儿科住院医师以及硕士水平的神职学生。统计分析表明,学科对决策有强烈影响,而性别影响很小。此外,基于父母和专业角色的态度差异也被发现。

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