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健康相关生活质量的概念化与测量:对一个不断发展领域的评论

Conceptualization and measurement of health-related quality of life: comments on an evolving field.

作者信息

Ware John E

机构信息

QualityMetric Inc, Lincoln, RI 02865, USA.

出版信息

Arch Phys Med Rehabil. 2003 Apr;84(4 Suppl 2):S43-51. doi: 10.1053/apmr.2003.50246.

DOI:10.1053/apmr.2003.50246
PMID:12692771
Abstract

This article summarizes personal views on the rapidly evolving field of functional health assessment and comments on their implications for advances in assessment methods used in rehabilitation medicine. Topics of strategic importance included (1). a new formulation of the structure of health status designed to distinguish role participation from the physical and mental components of health for purposes of international studies; (2). applications of item response theory that offer advantages in constructing better functional health measures and cross-calibrating their underlying metrics; (3). computerized dynamic assessment technology, well proven in education and psychology, which may lead to more practical assessments and more precise score estimates across a wide range of functional health levels; and (4). intellectual property issues involved in standardizing and promoting readily available assessment tools, ensuring their scientific validity, and achieving the best possible partnership between the scientific community and those developing commercial applications. Promising results from preliminary attempts to standardize and improve the metrics of functional health assessment constitute grounds for optimism regarding their potential usefulness in rehabilitation medicine. Someday, all tools used to measure each functional health concept, including the best single-item measure and the most precise computerized dynamic health assessment, will be scored on the same metric and their results will be directly comparable. To achieve this goal in rehabilitation medicine, we have much work to do.

摘要

本文总结了对功能健康评估这一快速发展领域的个人观点,并对其对康复医学评估方法进展的影响进行了评论。具有战略重要性的主题包括:(1)一种新的健康状况结构表述,旨在为国际研究目的将角色参与与健康的身体和心理成分区分开来;(2)项目反应理论的应用,在构建更好的功能健康测量方法和交叉校准其潜在指标方面具有优势;(3)计算机化动态评估技术,在教育和心理学领域已得到充分验证,可能会带来更实用的评估以及在广泛的功能健康水平上更精确的分数估计;(4)标准化和推广现成评估工具、确保其科学有效性以及在科学界与开发商业应用的人员之间实现最佳合作关系所涉及的知识产权问题。功能健康评估指标标准化和改进的初步尝试取得的有希望的结果,为其在康复医学中的潜在实用性带来了乐观的理由。总有一天,用于测量每个功能健康概念的所有工具,包括最佳的单项测量和最精确的计算机化动态健康评估,都将以相同的指标进行评分,并且它们的结果将直接可比。为了在康复医学中实现这一目标,我们还有很多工作要做。

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