Roberts Jillian, Hayashi Allen, Anderson John O, Martin Joan M, Maxwell Lani L
University of Victoria, Victoria, British Columbia, Canada.
J Pediatr Surg. 2003 May;38(5):779-83. doi: 10.1016/jpsu.2003.50166.
BACKGROUND/PURPOSE: The current project is a preliminary qualitative exploration of changes in quality of life of patients who have undergone the Nuss Procedure. The current study explores quality of life after surgical repair from the perspectives of both the patients and the parent(s) of the younger participants.
This research constitutes the first segment in a mixed-method longitudinal design. The author conducted semistructured interviews based on the Keith and Schalock's quality of life model. Five youth who have undergone the Nuss Procedure and the parent(s) of the 4 younger participants were included in the study for a total of 10 participants. Textual analysis has been carried out using Atlas.ti, a qualitative data analysis program that facilitates such activities as selecting, coding, and comparing textual segments.
Results based on these preliminary data indicate that the patients interviewed had significant improvement in overall quality of life, which they attributed to the surgery. Specific examples of patients' expressions of improved self-confidence and renewed interest in physical activity are given.
The Nuss Procedure is a minimally invasive surgical option for correcting pectus excavatum deformities that may make important contributions to patients' self-perceptions and quality of life. The participants in the current study expressed satisfaction with both the physical results of the surgery and with how it improved their overall quality of life. The authors recommend further prospective longitudinal research that assesses pre- and postsurgery psychosocial status and the maintenance of perceived quality of life changes.
背景/目的:本项目是对接受努氏手术的患者生活质量变化进行的初步定性探索。本研究从患者及其年轻参与者的父母的角度探讨手术修复后的生活质量。
本研究是混合方法纵向设计的第一阶段。作者基于基思和沙洛克的生活质量模型进行了半结构化访谈。研究纳入了5名接受过努氏手术的青少年以及4名年轻参与者的父母,共10名参与者。使用Atlas.ti进行了文本分析,Atlas.ti是一款定性数据分析程序,有助于进行诸如选择、编码和比较文本片段等活动。
基于这些初步数据的结果表明,接受访谈的患者的整体生活质量有显著改善,他们将其归因于手术。文中给出了患者表达自信心增强和对体育活动重新产生兴趣的具体例子。
努氏手术是一种用于矫正漏斗胸畸形的微创手术选择,可能对患者的自我认知和生活质量有重要贡献。本研究的参与者对手术的身体效果及其对整体生活质量的改善都表示满意。作者建议进一步开展前瞻性纵向研究,评估手术前后的心理社会状况以及生活质量变化的维持情况。