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1型糖尿病儿童及青少年的夏令营与生活质量

Summer camps and quality of life in children and adolescents with type 1 diabetes.

作者信息

Mancuso Michele, Caruso-Nicoletti Manuela

机构信息

Department of Paediatrics, University of Catania, Catania, Italy.

出版信息

Acta Biomed. 2003;74 Suppl 1:35-7.

Abstract

Topics concerning quality of life in children and adolescents with Type 1 Diabetes Mellitus (T1DM) and summer camps, have only recently appeared in the scientific literature. Interest in quality of life in diabetic patients has lately increased. The Hvidore study group has recruited 2000 patients from several countries and has published an important paper whose conclusions suggest that T1DM patients have a better quality of life if they have a good metabolic control. The aim of this paper is to evaluate if summer camps, seen as an educational and therapeutic tool, can improve quality of life by increasing knowledge and self-management capacities. Certainly summer camps help T1DM children and adolescents to understand that they can be on vacations, practice sports, have fun with other children away from home and parents, just like every other child and adolescent. At summer camps T1DM patients become aware of not being the only ones to deal with the problem of diabetes; in addition parents become aware of their child's skills in the disease management and lastly improve the relationship with the medical staff who will have the opportunity of living an extremely important training experience. The more ambitious aim of summer camps, i.e. the gaining of knowledge and self-management skills and improvement in metabolic control, seems difficult to achieve. The limited literature available suggests that it is unlikely that one or more summer camps will contribute to the improvement of metabolic control; nevertheless, it is not easy to make such evaluations with scientific criteria. We think that Italian guidelines for summer camps should help in standardizing the organization and management; in this way it will be probably easier to evaluate the impact of summer camps on the quality of life.

摘要

有关1型糖尿病(T1DM)儿童和青少年的生活质量以及夏令营的话题,直到最近才出现在科学文献中。近来,对糖尿病患者生活质量的关注有所增加。Hvidore研究小组从几个国家招募了2000名患者,并发表了一篇重要论文,其结论表明,如果T1DM患者有良好的代谢控制,他们的生活质量会更好。本文的目的是评估被视为一种教育和治疗工具的夏令营是否能通过增加知识和自我管理能力来提高生活质量。当然,夏令营有助于T1DM儿童和青少年明白,他们可以像其他儿童和青少年一样度假、进行体育活动、在远离家和父母的情况下与其他孩子一起玩耍。在夏令营中,T1DM患者意识到自己不是唯一应对糖尿病问题的人;此外,家长也意识到孩子在疾病管理方面的技能,最后还改善了与医务人员的关系,而医务人员也将有机会获得一次极其重要的培训经历。夏令营更宏伟的目标,即获取知识和自我管理技能以及改善代谢控制,似乎难以实现。现有的有限文献表明,不太可能一次或多次夏令营就能改善代谢控制;然而,用科学标准进行这样的评估并不容易。我们认为意大利的夏令营指南应有助于规范组织和管理;这样一来,评估夏令营对生活质量的影响可能会更容易。

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