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[患者眼中的结节病:问卷调查结果]

[Sarcoidosis as seen by a patient: results of questionnaire survey].

作者信息

Guryleva M E, Vizel' E A, Kazakov I M, Domracheva O V, Tiurina N P, Vizel' A A

出版信息

Probl Tuberk Bolezn Legk. 2003(6):10-3.

PMID:12918232
Abstract

Two hundred patients with sarcoidosis were interviewed by a questionnaire in the global Internet. For comparison, the same questionnaire was used in the interviews of 60 patients in Kazan. Among international responders, patients from the USA were prevalent. The age of 30-39 years was predominant in both groups, females were three fourths. Predominance of these or those social groups was not established. At the same time, analysis of professions revealed a large number of medical workers in both Kazan (11.7%) and abroad (17%). In global practice the diagnosis of sarcoidosis is much more frequently histologically verified though in Russia the likely diagnosis of sarcoidosis is much earlier established during the patient's visit to a doctor. The basic drugs for its therapy are glucocorticoids. Inhaled steroids are used relatively rarely. Only Russia is marked by the use of antituberculous agents. The authors note that the Internet may be a field for research activities in medical science.

摘要

通过全球互联网的调查问卷对200例结节病患者进行了访谈。为作比较,在喀山对60例患者进行访谈时使用了相同的问卷。在国际受访者中,来自美国的患者居多。两组中年龄在30至39岁的占主导,女性占四分之三。未确定这些或那些社会群体占主导地位。同时,职业分析显示,喀山(11.7%)和国外(17%)的医疗工作者数量都很多。在全球实践中,结节病的诊断通过组织学验证的情况更为常见,不过在俄罗斯,结节病的疑似诊断在患者就医时确立得要早得多。其治疗的基本药物是糖皮质激素。吸入性类固醇的使用相对较少。只有俄罗斯使用抗结核药物。作者指出,互联网可能是医学科研活动的一个领域。

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