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[生活质量——作为医学参数的需求与现实,与作为个体现实的生活质量]

[Quality of life--demands and reality as a medical parameter versus quality of life as individual reality].

作者信息

Meran J G

机构信息

Abteilung Hämatologie und Onkologie des Zentrums Innere Medizin, Medizinischen Hochschule Hannover, Deutschland.

出版信息

Wien Med Wochenschr. 1992;142(23-24):539-43.

PMID:1296398
Abstract

Quality of life (QL) is a term, whose definition extends beyond scientific methods. Even the most accurate description will only be able to represent a part of the reality due to the proviso of only a limited view. For that reason the abandonment of this term, described as "utopical" and "principally remaining in dissent", was called for. This could be countered by the possibilities to use QL as a therapeutic aim, as well as an aid towards finding an individual indication. Alone the demand staged by QL, to take the individuality seriously, and to be the motor for patient oriented medicine, make this term valuable. The definition itself will remain a called instruments have been developed and tuned, their evaluation has not yet been concluded. The acceptance of QL-registration within clinical studies is low, since the individual integration of values compared to the biometric difficulties can hardly be generalized. The aims of QL-research are: the individual focus on the field of projection of QL; a motivation-oriented mode of record; the involvement of QL-registration in form of information and accompaniment; adequate modular techniques including dialogical methods (nondirective interviews); the establishment of a QL-anamnesis towards an extension of the clinical picture; the observance of a possible conflict of roles, the danger of linguistic inaccuracies and misunderstandings, the consideration of a person's privacy.

摘要

生活质量(QL)是一个定义超出科学方法范畴的术语。即便最精确的描述,由于仅基于有限视角这一前提,也只能呈现部分现实。因此,有人呼吁摒弃这个被形容为“乌托邦式的”且“主要仍存争议”的术语。然而,QL 可被用作治疗目标以及辅助确定个体适应症,这足以反驳上述观点。仅凭 QL 所提出的要认真对待个体性并成为以患者为导向医学的驱动力这一要求,就使得这个术语颇具价值。其定义本身仍有待完善,因为虽已开发并调整了相关工具,但其评估尚未完成。临床研究中对 QL 登记的接受度较低,因为相较于生物测量方面的困难,价值观的个体整合很难一概而论。QL 研究的目标包括:个体聚焦于 QL 的投射领域;采用以动机为导向的记录方式;将 QL 登记以信息及陪伴的形式纳入其中;运用包括对话方法(非指导性访谈)在内的适当模块化技术;建立 QL 问诊以扩展临床情况描述;注意可能出现的角色冲突、语言不准确及误解的风险以及对个人隐私的考量。

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