Trentini M, Pacheco M A, Martins M L, da Silva D M, de Farias S R, Duarte R, Martins J C, Tomaz C E
Rev Gaucha Enferm. 1992 Jul;13(2):22-8.
This study reveals some aspects of ostomy patients life experience. The data were obtained by using the participant observation technique during the monthly meeting session of the Ostomy Patients Association from July 1989 to August 1991. The findings showed that the ostomized patients were concerned with: 1) the ostomy pouch (how to get it); 2) other persons opinion about ostomized patients; 3) their sexuality, and stoma care. The patients perceived themselves as physically disable and inferior persons. Some of them perceived themselves as having a normal life. Other patients also had to cope with the stigma of cancer.
本研究揭示了造口术患者生活经历的一些方面。数据是在1989年7月至1991年8月造口术患者协会的月度会议期间,通过参与观察技术获得的。研究结果表明,造口术患者关注以下方面:1)造口袋(如何获取);2)其他人对造口术患者的看法;3)他们的性方面以及造口护理。患者认为自己身体残疾且低人一等。他们中的一些人认为自己过着正常生活。其他患者还不得不应对癌症带来的污名。