Pueschel S M, Murphy A
Am J Ment Defic. 1977 Jan;81(4):325-30.
An attempt was made to analyze 414 parents' perceptions of their experiences at the birth of their child with Down's syndrome. The interpretation of the results and the parents' comments suggest that the counseling of parents with a newborn Down's syndrome child demands tact, truthfulness, and empathetic guidance. The parents should be informed of the child's condition in a kind and sensitive manner as soon as the diagnosis of Down's syndrome has been made. Appropriate terminology should be employed, and both parents should be present when the physician tells them of their misfortune. Unconditional recommendations of institutionalization of the child with Down's syndrome should be practices of the past. The professionals' thoughtful considerations and mature counsel should assist constructively in shaping the child's future.
一项针对414名父母对其患有唐氏综合征孩子出生经历的看法进行了分析。结果解读及父母的评论表明,为患有唐氏综合征新生儿的父母提供咨询需要机智、诚实和富有同理心的指导。一旦确诊唐氏综合征,就应以亲切且敏感的方式告知父母孩子的病情。应使用恰当的术语,并且医生告知父母不幸消息时,父母双方都应在场。将唐氏综合征患儿送入机构照料的无条件建议应成为过去式。专业人员的深思熟虑和成熟建议应有助于建设性地塑造孩子的未来。