Department of Pediatrics, Division of Hematology/Oncology, The Children's Hospital at Montefiore, 3415 Bainbridge Ave., Bronx, NY, 10467, USA,
Support Care Cancer. 2013 Nov;21(11):2977-82. doi: 10.1007/s00520-013-1874-8. Epub 2013 Jun 13.
The discussion that occurs between a pediatric oncologist and a family when they first learn about their child's new diagnosis of cancer is known as the "Day One Talk." Few studies have addressed parent preferences when learning that their child has been diagnosed with cancer. The objective of this study is to assess what information parents of children with newly diagnosed cancer believe is important to learn during the Day One Talk.
In this cross-sectional study, a survey tool based on expert opinion was created to assess parents' views of components of the Day One Talk including its content, length, and setting, as well as whether the child should be present for the initial talk and which staff should be present for the talk.
Sixty-two parents of children with newly diagnosed cancer participated. Ninety-seven percent believed that the Day One Talk is extremely important. Ninety percent believed that the word "cancer" should be used during the Day One Talk. Seventy-seven percent believed that the pediatric oncologist should provide specific numbers regarding cure rates for the patient's diagnosis. Eighty-four percent of parents do not believe that children younger than 14 should be present.
These results suggest that parents of children with cancer have certain preferences regarding the Day One Talk. When conducting the Day One Talk, providers should elicit parent preferences regarding these issues in order to best meet families' needs.
儿科肿瘤医生和患者家庭在首次得知患儿癌症新诊断时进行的讨论被称为“首日谈话”。鲜有研究探讨过患儿父母在得知孩子被诊断为癌症时的偏好。本研究旨在评估新诊断为癌症的患儿父母认为在首日谈话中需要了解的重要信息。
在这项横断面研究中，我们基于专家意见创建了一个调查工具，以评估父母对首日谈话内容、时长和环境的看法，包括患儿是否应参加初次谈话以及应让哪些医务人员参加谈话。
62 名新诊断为癌症的患儿父母参与了研究。97%的父母认为首日谈话极其重要。90%的父母认为在首日谈话中应使用“癌症”一词。77%的父母认为儿科肿瘤医生应提供患者诊断的具体治愈率数据。84%的父母认为 14 岁以下的儿童不应参加谈话。
这些结果表明，癌症患儿的父母对首日谈话有一定的偏好。在进行首日谈话时，医生应了解父母在这些问题上的偏好，以最大程度地满足家庭的需求。
