Dumaret A C, Donnelly A, Rosset D J
Ingénieur de Recherche á l'INSERM, ADREMIH, Montrouge.
J Gynecol Obstet Biol Reprod (Paris). 1996;25(6):629-35.
Which solutions to child care are proposed to parents just after the diagnosis of Down's syndrome? The situation of Down's syndrome babies born in 1980-89 and abandoned at birth in Paris was studied. Semi-structured interviews were conducted with medical and social staffs of 13 maternity hospitals where 60% of these DS babies were abandoned. In 10 years, 102 DS babies were given up to the Child Welfare Agency and to private adoption agencies. They represent 10% of all abandoned children at birth and 22% of DS live births in Paris. Relations between abandonment, type of maternity hospital and social class of parents are analysed. Several factors influence the parents' decision in planning for the child: handicap, advice and way of presenting alternatives: in 1/3 of the cases, adoption was proposed directly. In the great majority, the child abandonment was decided in a situation of emergency and profound emotional stress, and outside of the legal procedure. Health care workers should listen to parents more so they can be better informed about their child's prognosis and all care alternatives before making their decision.
在唐氏综合征确诊后，会向家长推荐哪些儿童保育解决方案？对1980年至1989年在巴黎出生并被遗弃的唐氏综合征婴儿的情况进行了研究。对13家妇产医院的医护人员和社会工作人员进行了半结构化访谈，这些医院中有60%的唐氏综合征婴儿被遗弃。在10年时间里，102名唐氏综合征婴儿被交给了儿童福利机构和私人收养机构。他们占所有出生时被遗弃儿童的10%，占巴黎唐氏综合征活产儿的22%。分析了遗弃、妇产医院类型与父母社会阶层之间的关系。有几个因素会影响父母对孩子未来的决定：残疾情况、建议以及提供选择的方式：在三分之一的案例中，直接提出了收养建议。绝大多数情况下，孩子被遗弃是在紧急和极度情绪压力的情况下做出的决定，且不在法律程序之内。医护人员应该多倾听家长的意见，以便他们在做出决定之前能更好地了解孩子的预后情况和所有护理选择。
