Sharp M C, Strauss R P, Lorch S C
Department of Pediatrics, University of North Carolina, Chapel Hill School of Medicine.
J Pediatr. 1992 Oct;121(4):539-46. doi: 10.1016/s0022-3476(05)81141-2.
Parents (N = 189) of children enrolled in 15 developmental day care centers completed questionnaires that examined the experience of being told bad news and elicited preferences for physician behavior in a hypothetical situation (communicating the diagnosis of Down syndrome). Parents, in comparison with their experiences, preferred (p < 0.001) more communication of information and feelings by their physician. Their strongest preferences were for physicians to show caring (97%), to allow parents to talk (95%), and to allow parents to show their own feelings (93%). They wanted physicians to share information (90%) and to be highly confident (89%). Most parents (87%) desired parent-to-parent referral, but only a few (19%) were referred. We conclude that there is a difference between what parents experience and what they desire in physicians who communicate bad news. Physicians control the interaction and are highly confident, but parents especially value physicians who show caring and allow parents to talk and share their feelings.
参与15个发育日托中心的孩子的家长（N = 189）完成了问卷调查，这些问卷调查了被告知坏消息的经历，并在一个假设情境（告知唐氏综合征的诊断）中引出了对医生行为的偏好。与自身经历相比，家长们更倾向于（p < 0.001）医生更多地交流信息和感受。他们最强烈的偏好是医生表现出关怀（97%）、允许家长交谈（95%）以及允许家长表达自己的感受（93%）。他们希望医生分享信息（90%）并表现出高度自信（89%）。大多数家长（87%）希望获得家长之间的转诊，但只有少数（19%）得到了转诊。我们得出结论，在传达坏消息的医生方面，家长的经历与他们的期望之间存在差异。医生控制着互动且高度自信，但家长尤其看重表现出关怀并允许家长交谈和分享感受的医生。
