Stenner Paul H D, Cooper Deborah, Skevington Suzanne M
Department of Psychology, University College London, Gower Street, London WC1E 6BT, UK.
Soc Sci Med. 2003 Dec;57(11):2161-72. doi: 10.1016/s0277-9536(03)00070-4.
Health related quality of life (HRQOL) is presented as a largely subjective construct of increasing importance in health discourse and practice. Key difficulties with the assessment and measurement of quality of life (QOL) are discussed. A Q methodological investigation of subjective constructions of health-related QOL is then reported using importance items derived from studies of the WHOQOL. Eight factors emerged from a factor analysis of the Q sorts of 90 healthy participants, each corresponding to a distinct construction of the meaning and relevance of QOL. The factors are interpreted and discussed under the following headings: 'Happy families, 'Stand on my own two feet', 'Emotional independence', 'Just do it!', 'Life as a positive challenge', 'In God we trust', 'Staying healthy enough to bring home the bacon' and 'You can't choose your family'. This diversity of views has implications for QOL testing.
健康相关生活质量(HRQOL)在健康领域的讨论和实践中,作为一个日益重要的主观概念被提出。文中讨论了生活质量(QOL)评估与测量的主要难点。随后报告了一项Q方法学研究,该研究利用来自世界卫生组织生活质量研究的重要项目,对与健康相关的生活质量的主观概念进行了调查。对90名健康参与者的Q分类进行因子分析后,出现了八个因素,每个因素都对应着生活质量意义和相关性的一种独特概念。这些因素将在以下标题下进行解读和讨论:“幸福家庭”、“独立自主”、“情感独立”、“勇往直前!”、“生活是积极的挑战”、“我们信仰上帝”、“保持健康以维持生计”和“无法选择家庭”。这种观点的多样性对生活质量测试具有启示意义。