Hardiman O, Corr B, Frost E, Gibbons P, Mahon L, Traynor B J
Neurology, Beaumont Hospital, Dublin, Ireland.
Ir Med J. 2003 Jul-Aug;96(7):200-3.
We conducted a telephone questionnaire to determine the utilisation of hospital and community based services by patients with Motor Neurone Disease and Multiple Sclerosis in Ireland. 94 MND and 188 MS patients participated in the study. MND patients were more likely to have free medical care than MS patients, despite legislation favouring the converse. Severely disabled MND patients were more successful at accessing free community-based services than were severely disabled MS patients. Private medical insurance conferred no advantage when obtaining services or purchasing equipment. Many patients were unaware of the specific roles of the various clinical professionals. There are significant deficiencies in patients' ability to access multidisciplinary services. Voluntary organisations often bridge the gap in service provision. An investment in services for people with chronic neurological disability is urgently required.
我们进行了一项电话问卷调查，以确定爱尔兰运动神经元病和多发性硬化症患者对医院和社区服务的利用情况。94名运动神经元病患者和188名多发性硬化症患者参与了该研究。尽管法律倾向于相反情况，但运动神经元病患者比多发性硬化症患者更有可能获得免费医疗。重度残疾的运动神经元病患者在获得免费社区服务方面比重度残疾的多发性硬化症患者更成功。在获得服务或购买设备时，私人医疗保险并无优势。许多患者并不了解各类临床专业人员的具体职责。患者获得多学科服务的能力存在显著不足。志愿组织常常弥补了服务提供方面的差距。迫切需要对慢性神经残疾患者的服务进行投资。
