继发性痴呆护理及其后果。
Secondary dementia caregiving and its consequences.
作者信息
Gaugler Joseph E, Mendiondo Marta, Smith Charles D, Schmitt Frederick A
机构信息
Department of Behavioral Science, University of Kentucky, Lexington, Kentucky, USA.
出版信息
Am J Alzheimers Dis Other Demen. 2003 Sep-Oct;18(5):300-8. doi: 10.1177/153331750301800505.
Abstract
The purpose of this study was to ascertain variations between primary and "secondary" caregivers (those who play a more supplemental role in the care of a relative). Survey data were collected from a sample of dementia caregivers recruited from the University of Kentucky Alzheimer's Disease Research Center (N = 1,016). Bivariate analyses found that primary and secondary caregivers varied on a number of background characteristics, and regression models indicated that primary caregivers provided a wider range of assistance with instrumental activities of daily living (IADLs), but not help with activities of daily living (ADLs). Primary and secondary caregivers did not differ significantly in reports of subjective health. The findings suggest that future research and interventions should be inclusive of primary and secondary caregivers.
摘要
本研究的目的是确定主要照料者与“次要”照料者（即在亲属照料中发挥更多补充作用的人）之间的差异。调查数据收集自肯塔基大学阿尔茨海默病研究中心招募的痴呆症照料者样本（N = 1016）。双变量分析发现，主要照料者和次要照料者在一些背景特征上存在差异，回归模型表明，主要照料者在日常生活工具性活动（IADL）方面提供了更广泛的帮助，但在日常生活活动（ADL）方面则没有提供帮助。主要照料者和次要照料者在主观健康报告方面没有显著差异。研究结果表明，未来的研究和干预措施应将主要照料者和次要照料者都纳入其中。
相似文献
1
Secondary dementia caregiving and its consequences.继发性痴呆护理及其后果。
Am J Alzheimers Dis Other Demen. 2003 Sep-Oct;18(5):300-8. doi: 10.1177/153331750301800505.
2
Caregiving tasks and unmet supportive care needs of family caregivers: A U.S. population-based study.照顾者任务和家庭照顾者未满足的支持性护理需求：一项基于美国人口的研究。
Patient Educ Couns. 2020 Mar;103(3):626-634. doi: 10.1016/j.pec.2019.10.015. Epub 2019 Oct 24.
3
The roles of unmet needs and formal support in the caregiving satisfaction and caregiving burden of family caregivers for persons with dementia.未满足的需求和正式支持在痴呆患者家庭照顾者的照顾满意度和照顾负担中的作用。
Int Psychogeriatr. 2018 Apr;30(4):557-567. doi: 10.1017/S104161021700196X. Epub 2017 Sep 28.
4
Caregivers' Sense of Coherence: Implications on Direct and Indirect Costs of Dementia Care.照顾者的综合感：对痴呆症照护直接和间接成本的影响。
J Alzheimers Dis. 2020;78(1):117-126. doi: 10.3233/JAD-200350.
5
Caregivers of Adults Living With Alzheimer's Disease or Dementia in 2020: A Secondary Analysis.2020 年阿尔茨海默病或痴呆症成人照护者：二次分析。
J Gerontol Nurs. 2022 Sep;48(9):15-25. doi: 10.3928/00989134-20220805-02. Epub 2022 Sep 1.
6
Family and Other Unpaid Caregivers and Older Adults with and without Dementia and Disability.有或没有痴呆症及残疾的老年人的家庭及其他无薪照料者
J Am Geriatr Soc. 2017 Aug;65(8):1821-1828. doi: 10.1111/jgs.14910. Epub 2017 Apr 20.
7
Caregiver characteristics are associated with neuropsychiatric symptoms of dementia.照料者的特征与痴呆症的神经精神症状相关。
J Am Geriatr Soc. 2006 May;54(5):796-803. doi: 10.1111/j.1532-5415.2006.00697.x.
8
Life-space mobility in dementia patients and family caregivers: A dyadic approach.痴呆患者及其家庭照顾者的生活空间流动性：一种对偶方法。
Int J Older People Nurs. 2020 Dec;15(4):e12341. doi: 10.1111/opn.12341. Epub 2020 Aug 15.
9
Baby boomer caregiver and dementia caregiving: findings from the National Study of Caregiving.婴儿潮一代照顾者与痴呆症护理：来自全国护理研究的结果。
Age Ageing. 2015 Mar;44(2):300-6. doi: 10.1093/ageing/afu119. Epub 2014 Oct 30.
10
The Patterns of Caregiving Activities for Family Caregivers of Older Adults in Hong Kong: An Exploratory Latent Class Analysis.香港老年人家庭照顾者的照顾活动模式：一项探索性潜在类别分析
J Gerontol B Psychol Sci Soc Sci. 2021 Sep 13;76(8):1605-1616. doi: 10.1093/geronb/gbaa203.
引用本文的文献
1
Exploring the Lived Experiences of Caregiving for Older Family Members by Young Caregivers in Singapore: Transition, Trials, and Tribulations.探讨新加坡年轻照护者照顾老年家庭成员的生活体验：转变、困境和磨难。
Int J Environ Res Public Health. 2024 Feb 5;21(2):182. doi: 10.3390/ijerph21020182.
2
Promoting Advance Care Planning for Persons with Dementia: Study Protocol for the LEAD (Life-Planning in Early Alzheimer's and Other Dementias) Clinical Trial.促进痴呆症患者的预先护理计划：LEAD（早期阿尔茨海默病及其他痴呆症患者的生命规划）临床试验研究方案。
OBM Integr Compliment Med. 2023;8(1). doi: 10.21926/obm.icm.2301004. Epub 2023 Jan 6.
3
Researched Apps Used in Dementia Care for People Living With Dementia and Their Informal Caregivers: Systematic Review on App Features, Security, and Usability.用于痴呆症患者及其非专业照护者的痴呆症照护研究型应用程序：关于应用程序功能、安全性和可用性的系统评价。
J Med Internet Res. 2023 Oct 12;25:e46188. doi: 10.2196/46188.
4
Development of a behavioural framework for dementia care partners' fall risk management.为痴呆症照护者的跌倒风险管理制定行为框架。
BMC Geriatr. 2022 Dec 17;22(1):975. doi: 10.1186/s12877-022-03620-4.
5
Extremely Distant and Incredibly Close: Physical Proximity, Emotional Attachment and Caregiver Burden.遥不可及又近在咫尺：身体亲近、情感依附与照护者负担。
Int J Environ Res Public Health. 2022 Jul 18;19(14):8722. doi: 10.3390/ijerph19148722.
6
Primary and Secondary Caregivers of People with Dementia (PwD): Differential Patterns and Implications for Psychological Support.痴呆症患者的主要和次要照料者：不同模式及对心理支持的启示
Healthcare (Basel). 2022 Jun 14;10(6):1102. doi: 10.3390/healthcare10061102.
7
Balancing care demands and personal needs: A typology on the reconciliation of informal dementia care with personal life based on narrative interviews.平衡照护需求和个人需求：基于叙事访谈的非正规痴呆症照护与个人生活协调的类型学。
Dementia (London). 2021 Nov;20(8):2689-2707. doi: 10.1177/14713012211008306. Epub 2021 Apr 13.
8
Structural Equation Modeling of Parkinson's Caregiver Social Support, Resilience, and Mental Health: A Strength-Based Perspective.基于优势视角的帕金森病照料者社会支持、心理韧性与心理健康的结构方程模型
Neurol Res Int. 2020 Feb 14;2020:7906547. doi: 10.1155/2020/7906547. eCollection 2020.
9
Changes in Caregivers Lifestyle after Severe Acquired Brain Injury: A Preliminary Investigation.严重后天性脑损伤后照顾者生活方式的改变：初步调查。
Biomed Res Int. 2018 Jul 3;2018:2824081. doi: 10.1155/2018/2824081. eCollection 2018.
10
Predictors of Secondary Role Strains Among Spousal Caregivers of Older Adults With Functional Disability.预测具有功能障碍的老年患者的配偶照顾者的次要角色压力因素。
Gerontologist. 2019 May 17;59(3):486-498. doi: 10.1093/geront/gnx204.
本文引用的文献
1
Family caregiving to elderly African Americans: caregiver types and structures.
J Gerontol B Psychol Sci Soc Sci. 1999 Jul;54(4):S237-41. doi: 10.1093/geronb/54b.4.s237.
2
Family care for older adults with disabilities: toward more targeted and interpretable research.为残疾老年人提供家庭护理：迈向更具针对性和可解释性的研究。
Int J Aging Hum Dev. 2002;54(3):205-31. doi: 10.2190/FACK-QE61-Y2J8-5L68.
3
Predictors of institutionalization of cognitively impaired elders: family help and the timing of placement.认知受损老年人机构化的预测因素：家庭帮助与安置时机
J Gerontol B Psychol Sci Soc Sci. 2000 Jul;55(4):P247-55. doi: 10.1093/geronb/55.4.p247.
4
Implications of differential impacts of care-giving for future research on Alzheimer care.
Aging Ment Health. 2001 May;5 Suppl 1:S23-34. doi: 10.1080/13607860120044783.
5
"Preclinical" AD revisited: neuropathology of cognitively normal older adults.重新审视“临床前”阿尔茨海默病：认知正常老年人的神经病理学
Neurology. 2000 Aug 8;55(3):370-6. doi: 10.1212/wnl.55.3.370.
6
When primary and secondary caregivers disagree: predictors and psychosocial consequences.当主要照料者和次要照料者意见不一致时：预测因素及心理社会后果
Psychol Aging. 1996 Sep;11(3):527-37. doi: 10.1037//0882-7974.11.3.527.
7
Social support and caregiving burden in family caregivers of frail elders.体弱老年人家庭照顾者的社会支持与照顾负担
J Gerontol. 1993 Sep;48(5):S245-54. doi: 10.1093/geronj/48.5.s245.
8
The impact of chronic illness on the health and well-being of family members.
Gerontologist. 1995 Feb;35(1):94-102. doi: 10.1093/geront/35.1.94.
9
Mental health of coresident family caregivers: examination of a two-factor model.同住家庭照顾者的心理健康：双因素模型检验
J Gerontol B Psychol Sci Soc Sci. 1995 Sep;50(5):P247-56. doi: 10.1093/geronb/50b.5.p247.
10
The Global Deterioration Scale for assessment of primary degenerative dementia.用于评估原发性退行性痴呆的总体衰退量表。
Am J Psychiatry. 1982 Sep;139(9):1136-9. doi: 10.1176/ajp.139.9.1136.
Zotero 插件