Nicolson Paula, Anderson Pippa
School for Health and Related Research (ScHARR), University of Sheffield, UK.
Br J Health Psychol. 2003 Sep;8(Pt 3):251-70. doi: 10.1348/135910703322370842.
Chronic bronchitis (a form of chronic obstructive pulmonary disease or COPD) is a common cause of morbidity and mortality resulting in around 5% of deaths in the UK. Over recent years, there has been an increased emphasis on patient-based evaluation of health and social care, which has led to a rapid growth in quality of life measures and an increase in measuring quality of life for COPD patients. However, less attention has been paid to patients' perceptions and experiences of everyday life, specifically their active engagement in the psychological, emotional and social aspects of adjustment and adaptation to living with chronic bronchitis. This study employs a series of four focus groups (N = 20) to identify key experiences of living with chronic bronchitis. The results, obtained through using both thematic and conceptual qualitative analysis, within a broadly symbolic interactionist framework, describe the subjective and sometimes contradictory ways in which the disease leads to psychological distress, dependency on medication, and disruption to social and family relationships, and has a negative impact on self-esteem. The study further argues for greater awareness of qualitative approaches to the broad view of quality of life as complementary to quality of life assessments.
慢性支气管炎(慢性阻塞性肺疾病或COPD的一种形式)是发病和死亡的常见原因,在英国约占死亡人数的5%。近年来,越来越强调基于患者的健康和社会护理评估,这导致生活质量测量方法迅速增加,以及慢性阻塞性肺疾病患者生活质量测量的增加。然而,对于患者对日常生活的认知和体验,特别是他们在适应慢性支气管炎生活的心理、情感和社会方面的积极参与,关注较少。本研究采用了一系列四个焦点小组(N = 20)来确定慢性支气管炎患者的关键生活体验。通过在广泛的象征互动主义框架内使用主题和概念性定性分析获得的结果,描述了疾病导致心理困扰、对药物的依赖以及社会和家庭关系中断,并对自尊产生负面影响的主观且有时相互矛盾的方式。该研究进一步主张提高对定性方法的认识,将其作为对生活质量评估的补充,以更全面地看待生活质量。