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[一项新的患者教育计划:血管炎]

[A new patient education program: vasculitis].

作者信息

Herlyn K, Höder J, Gross W L, Reinhold-Keller E

机构信息

Medizinische Krankenhausabteilung Rheumaklinik Bad Bramstedt, Poliklinik für Rheumatologie, Universitätsklinikum Schleswig-Holstein Campus Lübeck, Oskar-Alexander-Str. 26, 24576 Bad Bramstedt, Germany.

出版信息

Z Rheumatol. 2003;62(Suppl 2):II17-20. doi: 10.1007/s00393-003-1205-4.

Abstract

Referring to the literature it is known that structured standardized patient education represents an effective additional treatment in patients with chronic diseases. Programs base on cognitive behavioral interventions. Within the last years an interdisciplinary approach for providing information on disease, therapies, side effects, coping strategies, nutrition and physiotherapy has been developed for patients with primary systemic vasculitides (PSV) in the vasculitis center Medical University of Luebeck/Bad Bramstedt. The contents of the seminars were revised and condensed into five modules. To evaluate the new program a documentation system consisting of patient and physician- administered questionnaires assessing socioeconomic, knowledge and disease-related outcome-parameters has been designed. Patients completed the questionnaires at baseline, 4 weeks, 6 and 12 months after training. First results show statistically significant improvement of knowledge and health-related quality of life.

摘要

参考相关文献可知,结构化的标准化患者教育是慢性病患者一种有效的辅助治疗方法。这些项目基于认知行为干预。在过去几年里,吕贝克医科大学/巴特布拉姆斯泰特血管炎中心为原发性系统性血管炎(PSV)患者开发了一种跨学科方法,用于提供有关疾病、治疗、副作用、应对策略、营养和物理治疗的信息。研讨会的内容经过修订并浓缩为五个模块。为了评估新方案,设计了一个由患者和医生填写的问卷组成的记录系统,用于评估社会经济、知识和疾病相关的结果参数。患者在基线、训练后4周、6个月和12个月时填写问卷。初步结果显示,知识水平和健康相关生活质量有统计学意义的改善。

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