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[患者教育——对改善风湿病患者长期管理的贡献]

[Patient education--a contribution to improvement of long-term management of patients with rheumatism].

作者信息

Langer H E

机构信息

Rheinisches Rheumazentrum St. Elisabeth-Hospital, Meerbusch.

出版信息

Z Rheumatol. 1995 Jul-Aug;54(4):207-12.

PMID:7495156
Abstract

Patient education has been recognized as an important tool in the therapy and the rehabilitation of patients with chronic rheumatic diseases. An increasing body of literature refers to favorable effects of patient education. Patient education improves coping with disease, reduces pain and depression and decreases arthritic "helplessness". Therefore, patient education should be a part of the comprehensive care for the rheumatic patient. The patient education group (Arbeitskreis Patientenschulung) of the German Society of Rheumatology (Deutsche Gesellschaft für Rheumatologie) has been initiated to develop a general concept of patient education in rheumatology and to elaborate various patient education programs. The patient education program for rheumatoid arthritis is described as a model for further patient education programs. It consists of six group sessions (modules). The program is conducted by an interdisciplinary team. A group leader is in charge of the program. Train-the-trainer courses should improve the quality of the program. Currently, the patient education group develops education programs for patients with systemic lupus erythematodes and related collagen diseases, spondyarthritis patients, patients with fibromyalgia and rheumatic children and their parents.

摘要

患者教育已被视为慢性风湿性疾病患者治疗和康复中的一项重要工具。越来越多的文献提及患者教育的积极效果。患者教育有助于应对疾病、减轻疼痛和抑郁,并减少关节炎所致的“无助感”。因此,患者教育应成为风湿性疾病患者综合护理的一部分。德国风湿病学会的患者教育小组已启动,旨在制定风湿病患者教育的总体概念,并精心设计各种患者教育项目。类风湿关节炎患者教育项目被视为其他患者教育项目的典范。该项目包括六次小组课程(模块)。该项目由一个跨学科团队实施。一名组长负责该项目。培训培训师课程应能提高项目质量。目前,患者教育小组正在为系统性红斑狼疮及相关胶原病患者、脊柱关节炎患者、纤维肌痛患者以及风湿性疾病患儿及其家长制定教育项目。

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