Romesberg Tricia L
Department of Pediatrics, Neonatology Division, University of New Mexico Children's Hospital, Albuquerque, NM 87131, USA.
Adv Neonatal Care. 2003 Oct;3(5):213-9.
The concept of futile care is controversial and difficult to define. Efforts to prolong life, once considered an outcome of healing, may now be viewed by some as harmful acts of prolonging suffering. This article reviews a number of cases representing this challenging ethical dilemma, such as Baby K and MacDonald v. Milleville. The Baby Doe regulations, the Emergency Medical Treatment and Labor Act (EMTALA), and the Born-Alive Protection Act of 2001, also are discussed to provide an improved understanding of the legal framework that impacts ethical decision making. Nurses at the bedside must be equipped with the ethical knowledge and communication skills necessary to care for patients and families facing the ethical dilemma of futile care. An increased focus on neonatal palliative care is suggested to provide infants, families, and staff with the necessary tools to work through this painful process.
无效治疗的概念存在争议且难以界定。曾经被视为治愈结果的延长生命的努力,现在可能被一些人视为延长痛苦的有害行为。本文回顾了一些代表这一具有挑战性的伦理困境的案例,如“宝贝 K”案和麦克唐纳诉米利维尔案。还讨论了《婴儿多伊法规》、《紧急医疗治疗和劳动法案》(EMTALA)以及2001年的《出生时存活保护法案》,以更好地理解影响伦理决策的法律框架。床边护士必须具备必要的伦理知识和沟通技巧,以照顾面临无效治疗伦理困境的患者和家属。建议增加对新生儿姑息治疗的关注,为婴儿、家庭和工作人员提供必要的工具,以度过这一痛苦过程。