Ramage J K, Davies A H
Carcinoid Clinic, Kings College Hospital and Department of Gastroenterology, North Hampshire Hospital Basingstoke, UK.
Endocr Relat Cancer. 2003 Dec;10(4):483-6. doi: 10.1677/erc.0.0100483.
Quality of life is multi-dimensional, including issues relating to symptoms from the disease but also social, emotional, functional and financial domains. Debate remains on the true definition of quality of life and its measurement. Quality of life measurements are best done by patients themselves, although, in some situations a proxy such as carer or relative can be substituted. Healthcare workers can over- or underestimate overall quality of life. Currently used devices for measuring quality of life in cancer include the European Organization for Research and Treatment of Cancer (EORTC) QLQ-C30, which is a generic tool for all cancers and which requires the use of add-on modules for specific cancers. We are developing a separate module for carcinoid/neuroendocrine tumours, in accordance with the EORTC guidelines on module development, which will be translated into five languages and will be available for use throughout Europe.
生活质量是多维度的，包括与疾病症状相关的问题，也包括社会、情感、功能和经济领域。关于生活质量的真正定义及其衡量方法仍存在争议。生活质量的测量最好由患者自己进行，不过在某些情况下，可以由护理人员或亲属等代理人代替。医护人员可能会高估或低估总体生活质量。目前用于测量癌症患者生活质量的工具包括欧洲癌症研究与治疗组织（EORTC）的QLQ-C30，这是一种适用于所有癌症的通用工具，对于特定癌症需要使用附加模块。我们正在按照EORTC关于模块开发的指南，为类癌/神经内分泌肿瘤开发一个单独的模块，该模块将被翻译成五种语言，并将在全欧洲可用。
