麦克纽心脏病健康相关生活质量量表：概述
The MacNew Heart Disease health-related quality of life instrument: a summary.
作者信息
Höfer Stefan, Lim Lynette, Guyatt Gordon, Oldridge Neil
机构信息
Department of Medical Psychology and Psychotherapy, University of Innsbruck, Austria, Dublin, Ireland.
出版信息
Health Qual Life Outcomes. 2004 Jan 8;2:3. doi: 10.1186/1477-7525-2-3.
BACKGROUND
The measurement of health, the effects of disease, and the impact of health care include not only an indication of changes in disease frequency and severity but also an estimate of patients' perception of health status before and after treatment. One of the more important developments in health care in the past decade may be the recognition that the patient's perspective is as legitimate and valid as the clinician's in monitoring health care outcomes. This has lead to the development of instruments to quantify the patients' perception of their health status before and after treatment.
METHODS
We review evidence supporting the measurement properties of the MacNew Heart Disease Health-related Quality of Life [MacNew] Questionnaire which was designed to evaluate how daily activities and physical, emotional, and social functioning are affected by coronary heart disease and its treatment.
RESULTS
Reliability was demonstrated by using internal consistency and the intraclass correlation coefficients for the three domains in the Dutch, English, Farsi, German, and Spanish versions of the MacNew. With internal consistency and intraclass correlation coefficients =>0.73, reliability is high. Validity of the MacNew was examined with factor analysis and three core underlying factors, physical, emotional, and social, were identified, explaining 63.0 - 66.5% of the observed variance and replicated in the translations with psychometric data. Construct validity of the MacNew was further demonstrated by extensive substantiation of the logical relationships, defined a priori, between items and other comparison tools. The MacNew is responsive and sensitive to changes in HRQL following various interventions for patients with heart disease with 11 of 13 effect size statistics >0.80. Taking an average of 10 minutes or less to complete, the respondent-burden for the MacNew is low and its acceptability is demonstrated by response rates of over 90%. Normative data are available for patients with myocardial infarction, angina, and heart failure in the English version.
CONCLUSION
The MacNew may be a valuable tool for assessing and evaluating health related quality of life in patients with heart disease.
背景
健康状况的衡量、疾病的影响以及医疗保健的作用，不仅包括疾病频率和严重程度变化的指标，还包括对患者治疗前后健康状况认知的评估。过去十年医疗保健领域更重要的进展之一可能是认识到在监测医疗保健结果方面，患者的观点与临床医生的观点同样合理有效。这促使开发了一些工具来量化患者对治疗前后健康状况的认知。
方法
我们回顾了支持MacNew心脏病健康相关生活质量问卷测量属性的证据，该问卷旨在评估冠心病及其治疗如何影响日常活动以及身体、情感和社会功能。
结果
通过荷兰语、英语、波斯语、德语和西班牙语版本的MacNew问卷三个领域的内部一致性和组内相关系数证明了其信度。内部一致性和组内相关系数≥0.73，信度较高。通过因子分析检验了MacNew问卷的效度，确定了身体、情感和社会三个核心潜在因子，解释了63.0%-66.5%的观察方差，并在翻译版本中通过心理测量数据得到重复。MacNew问卷的结构效度通过对项目与其他比较工具之间先验定义的逻辑关系的广泛证实得到进一步证明。MacNew问卷对心脏病患者进行各种干预后的健康相关生活质量变化有反应且敏感，13个效应量统计中有11个>0.80。MacNew问卷平均完成时间为10分钟或更短，应答负担较低，应答率超过90%证明了其可接受性。英文版本有心肌梗死、心绞痛和心力衰竭患者的常模数据。
结论
MacNew问卷可能是评估心脏病患者健康相关生活质量的一个有价值的工具。
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