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关于癌症临床试验的在线信息:综合癌症中心网站评估

On-line information about cancer clinical trials: evaluating the Web sites of comprehensive cancer centers.

作者信息

Monaco Valerie, Krills Sandra K

机构信息

Center for Biomedical Informatics, University of Pittsburgh, PA, USA.

出版信息

AMIA Annu Symp Proc. 2003;2003:470-4.

Abstract

The objective of this study was to examine the information provided on comprehensive cancer centers' Web sites regarding clinical trials. Thirty-nine Web sites were visually inspected for four categories of variables: navigation to the clinical trial information, search functionality provided to the visitor, information content provided about trials, and the reading level of the information provided. Results indicated that for those Web sites that provided information about clinical trials, the content was often limited and trial descriptions were written at a college reading level. This study suggests that these Web sites are not yet adequately designed to serve as a successful aid for increased trial accrual. The design of future online clinical trial information should be guided by data from consumer health informatics research.

摘要

本研究的目的是检查综合癌症中心网站上提供的有关临床试验的信息。对39个网站进行了视觉检查,涉及四类变量:临床试验信息的导航、为访问者提供的搜索功能、关于试验提供的信息内容以及所提供信息的阅读水平。结果表明,对于那些提供临床试验信息的网站,内容往往有限,试验描述的撰写水平为大学阅读水平。本研究表明,这些网站的设计尚不足以成功助力增加试验入组人数。未来在线临床试验信息的设计应以消费者健康信息学研究的数据为指导。

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