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多发性硬化症的同伴支持小组:当前成效与未来方向。

Peer support groups in multiple sclerosis: current effectiveness and future directions.

作者信息

Messmer Uccelli M, Mancuso Mohr L, Battaglia M A, Zagami P, Mohr D C

机构信息

Italian Multiple Sclerosis Society, Department of Health Services and Research, Genoa, Italy.

出版信息

Mult Scler. 2004 Feb;10(1):80-4. doi: 10.1191/1352458504ms973oa.

Abstract

Peer support programs have become a common method of providing support for patients with chronic illness. Utilizing peers as resources has been proposed as an effective means for coping with a stressful life experience and for gaining support from others who share a common factor, although data are somewhat mixed on the efficacy of peer support. The aim of the present study was to evaluate the effectiveness of eight weeks of a standard form of peer support in improving quality of life and reducing depressive symptoms in 44 patients with multiple sclerosis (MS). One person from each of six groups participated in a training course in order to learn basic principles of peer support. Eight weekly sessions were held and patients completed self-administered questionnaires pre- and post-treatment assessing quality of life and depression. Results showed that support groups do not provide consistent improvement in quality of life or depression in patients with MS and suggest that patients who have better mental health functioning could be at risk for deterioration in support groups.

摘要

同伴支持项目已成为为慢性病患者提供支持的常见方式。利用同伴作为资源已被提议作为应对压力性生活经历以及从有共同因素的其他人那里获得支持的有效手段,尽管关于同伴支持的效果数据有些参差不齐。本研究的目的是评估为期八周的标准形式同伴支持在改善44例多发性硬化症(MS)患者的生活质量和减轻抑郁症状方面的有效性。六个小组中的每组各有一人参加了一个培训课程,以便学习同伴支持的基本原则。举行了八次每周一次的会议,患者在治疗前和治疗后完成了自我管理的问卷,评估生活质量和抑郁情况。结果表明,支持小组并未使MS患者的生活质量或抑郁状况得到持续改善,并表明心理健康功能较好的患者在支持小组中可能有恶化的风险。

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