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多发性硬化症患者应对疾病的前因:一项质性内容分析

Antecedents of Coping with the Disease in Patients with Multiple Sclerosis: A Qualitative Content Analysis.

作者信息

Dehghani Ali, Dehghan Nayeri Nahid, Ebadi Abbas

机构信息

Department of Nursing, School of Nursing and Paramedical, Jahrom University of Medical Sciences, Jahrom, Iran.

Nursing and Midwifery Care Research Center, School of Nursing and Midwifery, Tehran University of Medical Sciences, Tehran, Iran.

出版信息

Int J Community Based Nurs Midwifery. 2017 Jan;5(1):49-60.

Abstract

BACKGROUND

Due to many physical and mental disorders that occur in multiple sclerosis patients, identifying the factors affecting coping based on the experiences of patients using qualitative study is essential to improve their quality of life. This study was conducted to explore the antecedents of coping with the disease in patients with multiple sclerosis.

METHODS

This is a qualitative study conducted on 11 patients with multiple sclerosis in 2015 in Tehran, Iran. These patients were selected based on purposive sampling. Data were collected using semi-structured and in-depth interviews and coded. These data were analyzed using the conventional content analysis. The rigor of qualitative data using the criteria proposed by Guba and Lincoln were assessed.

RESULTS

Five main categories were revealed: (1) social support, (2) lenience, (3) reliance on faith, (4) knowledge of multiple sclerosis and modeling, and (5) economic and environmental situation. Each category had several distinct sub-categories.

CONCLUSIONS

The results of this study showed that coping with multiple sclerosis is a complex, multidimensional and contextual concept that is affected by various factors in relation to the context of Iran. The findings of the study can provide the healthcare professionals with deeper recognition and understanding of these antecedents to improve successful coping in Iranian patients suffering from multiple sclerosis.

摘要

背景

由于多发性硬化症患者会出现多种身心障碍,基于患者经历运用定性研究来确定影响应对方式的因素对于提高他们的生活质量至关重要。本研究旨在探讨多发性硬化症患者应对疾病的影响因素。

方法

这是一项于2015年在伊朗德黑兰对11例多发性硬化症患者开展的定性研究。这些患者通过目的抽样法选取。采用半结构化深入访谈收集数据并进行编码。运用常规内容分析法对这些数据进行分析。依据古巴和林肯提出的标准评估定性数据的严谨性。

结果

揭示了五个主要类别:(1)社会支持,(2)宽容,(3)对信仰的依赖,(4)对多发性硬化症的认知及榜样作用,(5)经济和环境状况。每个类别都有几个不同的子类别。

结论

本研究结果表明,应对多发性硬化症是一个复杂、多维度且与背景相关的概念,受到伊朗背景下各种因素的影响。该研究结果可为医护人员提供对这些影响因素的更深入认识和理解,以改善伊朗多发性硬化症患者的成功应对能力。

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