Zebrack Brad J, Eshelman Debra A, Hudson Melissa M, Mertens Ann C, Cotter Kelly L, Foster Barbara M, Loftis Lauren, Sozio Margaret, Oeffinger Kevin C
University of Southern California School of Social Work, Los Angeles, California, 90089-0411, USA.
Cancer. 2004 Feb 15;100(4):843-50. doi: 10.1002/cncr.20033.
Most children diagnosed with cancer are surviving into adulthood but are not receiving adequate or appropriate follow-up health care. However, to the authors' knowledge, there is little literature published to date exploring potential barriers to long-term risk-based follow-up care for young adult survivors of childhood cancer.
In the current study, using a modified Delphi technique, young adult cancer survivors identified barriers to utilizing appropriate follow-up care and offered suggestions for ways to enhance health care in this young adult population.
Major barriers to health care were found to be a lack of knowledge on the part of both physicians and survivors regarding long-term health issues related to cancer. Suggestions to enhance care included self-advocacy training for survivors and advanced training for primary care physicians who may treat childhood cancer survivors as they transition into adulthood.
The results of the current study are consistent with reports that young adult survivors of childhood cancer need or desire information regarding their medical histories, psychosocial support, and social advocacy.
大多数被诊断患有癌症的儿童都能存活至成年，但他们并未得到充分或适当的后续医疗保健。然而，据作者所知，迄今为止几乎没有文献探讨儿童癌症成年幸存者基于风险的长期后续护理的潜在障碍。
在当前研究中，采用改良的德尔菲技术，成年癌症幸存者确定了利用适当后续护理的障碍，并就改善该成年人群医疗保健的方法提出了建议。
发现医疗保健的主要障碍是医生和幸存者双方对与癌症相关的长期健康问题缺乏了解。改善护理的建议包括对幸存者进行自我维权培训，以及对可能在儿童癌症幸存者成年过渡期间进行治疗的初级保健医生进行高级培训。
当前研究的结果与以下报告一致，即儿童癌症成年幸存者需要或渴望获得有关其病史、心理社会支持和社会维权的信息。
