Rubin Haya R, Fink Nancy E, Plantinga Laura C, Sadler John H, Kliger Alan S, Powe Neil R
Department of Medicine, Quality of Care Research, The Johns Hopkins School of Medicine, Baltimore, Md 21205, USA.
JAMA. 2004 Feb 11;291(6):697-703. doi: 10.1001/jama.291.6.697.
In light of conflicting evidence of differential effects of dialysis modality on survival, patient experience becomes a more important consideration in choosing between hemodialysis and peritoneal dialysis.
To compare patient satisfaction with hemodialysis and peritoneal dialysis in a cohort of patients who have recently begun dialysis.
Cross-sectional survey at enrollment in a prospective inception cohort study of patients who recently started dialysis at 37 dialysis centers participating in the Choices for Healthy Outcomes in Caring for End-stage Renal Disease (CHOICE) study, a national multicenter study of dialysis outcomes, from October 1995 to June 1998.
Of 736 enrolled incident dialysis patients, 656 (89%) returned a satisfaction questionnaire after an average of 7 weeks of dialysis.
Data collected from a patient-administered questionnaire including 3 overall ratings and 20 items rating specific aspects of dialysis care.
Patients receiving peritoneal dialysis were much more likely than those receiving hemodialysis to give excellent ratings of dialysis care overall (85% vs 56%, respectively; relative probability, 1.46 [95% confidence interval, 1.31-1.57]) and significantly more likely to give excellent ratings for each specific aspect of care rated. The 3 items with the greatest differences were in the domain of information provided (average of information items: peritoneal dialysis [69% excellent] vs hemodialysis [30% excellent]). The smallest differences were in ratings of accuracy of information from the nephrologist, response to pain, amount of fluid removed, and staff availability in an emergency. Adjustment for patient age, race, education, health status, marital status, employment status, distance from the center, and time since starting dialysis did not reduce the differences between peritoneal dialysis and hemodialysis patients.
After several weeks of initiating dialysis, patients receiving peritoneal dialysis rated their care higher than those receiving hemodialysis. These findings indicate that clinicians should give patients more information about the option of peritoneal dialysis.
鉴于有关透析方式对生存率的不同影响的证据相互矛盾,在选择血液透析和腹膜透析时,患者体验成为一个更重要的考虑因素。
比较一组近期开始透析的患者对血液透析和腹膜透析的满意度。
在一项前瞻性起始队列研究中进行横断面调查,该研究对象为1995年10月至1998年6月期间在37个透析中心开始透析的患者,这些中心参与了“终末期肾病护理健康结局选择”(CHOICE)研究,这是一项关于透析结局的全国多中心研究。
在736名登记的新透析患者中,656名(89%)在平均透析7周后返回了一份满意度调查问卷。
从一份由患者自行填写的问卷中收集数据,包括3项总体评分和20项对透析护理特定方面的评分。
接受腹膜透析的患者比接受血液透析的患者更有可能对透析护理给出优秀评分(分别为85%和56%;相对概率为1.46[95%置信区间为1.31 - 1.57]),并且在对每项护理特定方面的评分中,更有可能给出优秀评分。差异最大的3项在提供的信息领域(信息项目平均值:腹膜透析[69%优秀]对血液透析[30%优秀])。差异最小的是对肾病专家信息准确性、疼痛反应、液体清除量以及紧急情况下工作人员可用性的评分。对患者年龄、种族、教育程度、健康状况、婚姻状况、就业状况、距中心的距离以及开始透析后的时间进行调整后,并未缩小腹膜透析患者和血液透析患者之间的差异。
开始透析几周后,接受腹膜透析的患者对其护理的评分高于接受血液透析的患者。这些发现表明临床医生应向患者提供更多关于腹膜透析选择的信息。