Leong Amye L, Euller-Ziegler Liana
Healthy Motivation, Daly City, CA 94015, USA.
Bull World Health Organ. 2004 Feb;82(2):115-20. Epub 2004 Mar 16.
Patient advocacy is based on the premise that people have the right to make their own choices about their health care. Personal advocacy is centred on the experiential expertise of the individual affected by the condition, whereas group advocacy is grounded on patient-centred strategies and actions. The first patient advocacy groups for arthritis were set up over 20 years ago in the USA and have subsequently spread to many other countries. This paper discusses the growth and impact of personal advocacy as well as recent developments in group advocacy in the Asia-Pacific region, Europe, and North America, in terms of arthritis awareness, research, corporate partnerships, and the Bone and Joint Decade global initiative.
患者维权基于这样一个前提，即人们有权对自己的医疗保健做出自主选择。个人维权以受病情影响的个人的经验性专业知识为核心，而群体维权则基于以患者为中心的策略和行动。最早的关节炎患者维权组织于20多年前在美国成立，随后扩展到许多其他国家。本文从关节炎认知、研究、企业合作以及全球“骨与关节十年”倡议等方面，探讨了亚太地区、欧洲和北美的个人维权的发展及影响以及群体维权的最新进展。
