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皮肤病实用工具目录:一种衡量皮肤病负担的方法。

A catalog of dermatology utilities: a measure of the burden of skin diseases.

作者信息

Chen Suephy C, Bayoumi Ahmed M, Soon Seaver L, Aftergut Kent, Cruz Ponciano, Sexton Shenara A, McCall Calvin O, Goldstein Mary K

机构信息

Department of Dermatology, Emory University School of Medicine, Emory Center for Outcomes Research, University School of Medicine, Atlanta, Georgia, USA.

出版信息

J Investig Dermatol Symp Proc. 2004 Mar;9(2):160-8. doi: 10.1046/j.1087-0024.2003.09112.x.

Abstract

Utilities are measures of quality of life that reflect the strength of individuals' preferences or values for a particular health outcome. As such, utilities represent a measure of disease burden. The aim of this article is to introduce the concept of utilities to the dermatology community and to present a catalog of dermatology utilities obtained from direct patient interviews. Our data are based on 236 total subjects from Grady Hospital (Atlanta, GA), Stanford Medical Center (Palo Alto, CA), and Parkland Hospital (Dallas, TX). The mean time trade-off utilities ranged from 0.640 for blistering disorders to 1.000 for alopecia, cosmetic, and urticaria. The mean utility across all diagnoses was 0.943. We present utilities for 17 diagnostic categories and discuss the underlying reasons for the significant disease burden that these utilities represent. We also present these dermatology categories relative to noncutaneous diseases to place the cutaneous utilities in perspective and to compare the burden of disease. We have demonstrated that skin diseases have considerable burden of disease and provided a preliminary repository of utility data for future researchers and policy makers.

摘要

效用是生活质量的衡量指标,反映了个体对特定健康结果的偏好或价值观的强度。因此,效用代表了疾病负担的一种衡量方式。本文的目的是向皮肤科领域介绍效用的概念,并展示通过直接患者访谈获得的皮肤科效用目录。我们的数据基于来自格雷迪医院(佐治亚州亚特兰大)、斯坦福医疗中心(加利福尼亚州帕洛阿尔托)和帕克兰医院(得克萨斯州达拉斯)的236名受试者。时间权衡效用的平均值范围从水疱性疾病的0.640到脱发、美容和荨麻疹的1.000。所有诊断的平均效用为0.943。我们展示了17个诊断类别的效用,并讨论了这些效用所代表的重大疾病负担的潜在原因。我们还展示了相对于非皮肤疾病的这些皮肤科类别,以便正确看待皮肤效用并比较疾病负担。我们已经证明皮肤病具有相当大的疾病负担,并为未来的研究人员和政策制定者提供了效用数据的初步资料库。

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