Siegel Karolynn, Brown-Bradley Courtney J, Lekas Helen-Maria
Center for the Psychosocial Study of Health and Illness, Mailman School of Public Health, Columbia University, New York, New York 10032, USA.
AIDS Patient Care STDS. 2004 May;18(5):275-88. doi: 10.1089/108729104323076016.
Fatigue, a common symptom among persons living with HIV/AIDS, is often underreported and undertreated. However, given fatigue's pervasive effects on well-being and functioning, the identification of its physiologic and psychological causes and strategies to alleviate it are important to patients' quality of life. As part of a study to understand better how HIV-positive middle-aged and older adults (50+) manage common symptoms, 49 participants discussed in depth their experience with fatigue. Most engaged in both self-care activities and sought the assistance of a health care professional. Frequent strategies included dietary changes, vitamins, modification of routines, rest, exercise, and prescribed medications for anemia, Vitamin B(12) deficiency, or testosterone deficiency. Complementary and alternative medicine (e.g., acupuncture, massage, herbal remedies, special juices) was also commonly used. Participants often used multiple strategies to alleviate their fatigue, possibly because of their tendency to attribute it to multiple causes. These HIV-positive older adults were also apt to view fatigue as an indirect indicator of their overall health status and immune functioning. This may explain why many of the coping strategies they used could be considered approaches to improving their overall health status as a means to increasing their energy levels. Health care professionals can play an important role in helping HIV-positive individuals manage their fatigue. The majority of participants tried to implement the coping suggestions offered by health care professionals, as well as those from family, friends, and support group members.
疲劳是艾滋病毒/艾滋病感染者的常见症状,常常未得到充分报告和治疗。然而,鉴于疲劳对幸福感和功能有普遍影响,确定其生理和心理原因以及缓解疲劳的策略对患者的生活质量至关重要。作为一项旨在更好地了解艾滋病毒呈阳性的中年及老年人(50岁以上)如何应对常见症状的研究的一部分,49名参与者深入讨论了他们的疲劳经历。大多数人既进行自我护理活动,也寻求医疗保健专业人员的帮助。常见的策略包括饮食改变、服用维生素、调整日常活动、休息、锻炼以及针对贫血、维生素B12缺乏或睾酮缺乏开具的药物。补充和替代医学(如针灸、按摩、草药疗法、特殊果汁)也被普遍使用。参与者常常采用多种策略来缓解疲劳,这可能是因为他们倾向于将疲劳归因于多种原因。这些艾滋病毒呈阳性的老年人也倾向于将疲劳视为其整体健康状况和免疫功能的间接指标。这或许可以解释为什么他们所采用的许多应对策略可被视为改善整体健康状况以增加能量水平的方法。医疗保健专业人员在帮助艾滋病毒呈阳性的个体应对疲劳方面可发挥重要作用。大多数参与者试图实施医疗保健专业人员以及家人、朋友和支持小组成员提供的应对建议。