Rose L, Pugh L C, Lears K, Gordon D L
The Johns Hopkins University School of Nursing, Baltimore, Maryland 21205, USA.
J Adv Nurs. 1998 Aug;28(2):295-304. doi: 10.1046/j.1365-2648.1998.00789.x.
Fatigue is a frequently reported symptom by persons with HIV infection and one that has an adverse impact on activities of daily living and overall quality of life. Although the concept of fatigue has been studied extensively and discussed in the literature, little is known about the experience of fatigue by persons with HIV infection. A hermeneutic phenomenological study was conducted to investigate the subjective experience of HIV-associated fatigue and to describe the management of fatigue in the context of daily life. In-depth interviews were done with 10 adult patients of an outpatient HIV/AIDS clinic. Thematic analysis identified three concerns that represented the meaning of fatigue for the participants. The first concern was 'Fatigue as a signal of AIDS'. A second concern was 'The mind, the body, the social experience of fatigue'. The third concern was 'Choosing ways to live with fatigue and addiction'. The findings provide insights for nursing practice regarding the subjective meaning of fatigue for patients with HIV and the need for nurses to explore this topic with patients.
疲劳是艾滋病毒感染者经常报告的一种症状,它会对日常生活活动和整体生活质量产生不利影响。尽管疲劳的概念在文献中已得到广泛研究和讨论,但对于艾滋病毒感染者的疲劳体验却知之甚少。本研究采用诠释现象学方法,旨在探究与艾滋病毒相关的疲劳的主观体验,并描述日常生活中疲劳的应对方式。研究对一家门诊艾滋病毒/艾滋病诊所的10名成年患者进行了深入访谈。主题分析确定了三个关注点,这些关注点代表了参与者对疲劳的理解。第一个关注点是“疲劳是艾滋病的信号”。第二个关注点是“疲劳的心理、身体和社会体验”。第三个关注点是“选择与疲劳和成瘾共存的方式”。这些研究结果为护理实践提供了见解,有助于了解艾滋病毒患者疲劳的主观意义,以及护士与患者探讨这一话题的必要性。