Cannaerts Nancy, Dierckx de Casterlé Bernadette, Grypdonck Mieke
Palliative Support Team, University Hospitals Leuven, Belgium.
Qual Health Res. 2004 Jul;14(6):816-35. doi: 10.1177/1049732304265977.
In this study, the authors describe the concept of palliative care as applied in a palliative care unit. They conducted in-depth interviews with 8 patients, 9 relatives, and 24 caregivers from two residential palliative care units. Observation of the care and of team meetings and analysis of patient records provided additional data. Palliative care involves a specific concept of care, the central focus of which is life. This is realized by two strategies. The first is to create space to live by diverting attention from the sick body, moving the illness into the background. The second is to fill the space as meaningfully as possible, so that patients can enjoy life even in the face of death. The quality of the caregiving process in palliative care is determined by a range of conditions and processes that reflect its complexity.
在本研究中,作者描述了姑息治疗在姑息治疗单元中的应用概念。他们对来自两个住院姑息治疗单元的8名患者、9名亲属和24名护理人员进行了深入访谈。对护理过程、团队会议的观察以及患者记录的分析提供了更多数据。姑息治疗涉及一种特定的护理概念,其核心关注点是生命。这通过两种策略来实现。第一种是通过将注意力从患病的身体上转移开,把疾病置于次要地位,从而创造生活空间。第二种是尽可能有意义地填充这个空间,以便患者即使面对死亡也能享受生活。姑息治疗中护理过程的质量由一系列反映其复杂性的条件和过程所决定。