Martin S C, Wolters P L, Klaas P A, Perez L, Wood L V
HIV and AIDS Malignancy Branch, National Cancer Institute, Bethesda, MD 20892, USA.
AIDS Care. 2004 Apr;16(3):283-92. doi: 10.1080/09540120410001665295.
The primary aim of this study was to examine coping strategies among families of HIV-infected children and how they relate to medical, central nervous system (CNS) and family environment factors. Caregivers of HIV-positive children (N=52) completed a family coping measure (F-COPES) and provided information regarding family environment. Data regarding medical and CNS status were obtained from patient records. Results indicated that families' passive coping and spiritual support were among the coping techniques used most often, and social support was used least often. Medical variables were unrelated to any coping styles. Families of children with CNS impairment endorsed more passive coping techniques than families of children with no apparent deficits. A trend was found for non-biological caregivers to seek out more community resources and support than biological caregivers. Findings suggest the need to target families least likely to utilize resources, and to teach them to effectively seek out and benefit from social and community supports.
本研究的主要目的是考察感染艾滋病毒儿童家庭的应对策略,以及这些策略与医疗、中枢神经系统(CNS)和家庭环境因素之间的关系。艾滋病毒呈阳性儿童的照料者(N = 52)完成了一项家庭应对措施(F - COPES),并提供了有关家庭环境的信息。有关医疗和中枢神经系统状况的数据来自患者记录。结果表明,家庭的消极应对和精神支持是最常使用的应对技巧,而社会支持使用得最少。医疗变量与任何应对方式均无关联。与没有明显缺陷的儿童家庭相比,中枢神经系统受损儿童的家庭认可更多的消极应对技巧。发现非亲生照料者比亲生照料者更倾向于寻求更多的社区资源和支持。研究结果表明,有必要针对最不可能利用资源的家庭,并教导他们有效地寻求社会和社区支持并从中受益。