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为痴呆症患者及其护理人员设立的会面中心的差异。一项多中心实施研究的结果。

Variations in meeting centers for people with dementia and their carers. Results of a multi-center implementation study.

作者信息

Dröes R M, Meiland F J M, Schmitz M J, Boerema I, Derksen E, De Lange J, Vernooij-Dassen M J F J, Van Tilburg W

机构信息

Department of Psychiatry, Alzheimer Center, Vrije Universiteit Medical Center and regional Mental Health Care Organisation GGZ Buitenamstel, 1075 BG Amsterdam, The Netherlands.

出版信息

Arch Gerontol Geriatr Suppl. 2004(9):127-47. doi: 10.1016/j.archger.2004.04.020.

Abstract

In this study we investigated whether a support program based on the model of the Amsterdam meeting centers for people with dementia and their carers, is in line with the needs and possibilities in other areas in the Netherlands, or if variations in the program are indicated. This study is part of a larger study into the nationwide implementation of meeting centers in the Netherlands. The data gathered on the basis of questionnaires shows that, although the support offer is almost identical on the interregional level, there are differences in terms of initiator(s), type of location, frequency of discussion groups and monthly meeting for all participants, background of staff members, number of volunteers and structural funding. The people with dementia who use the meeting centers in the various regions do not differ significantly on sex, age, civil status, severity of dementia and physical invalidity. The family carers also exhibit more similarities than differences on the interregional level. In every region the majority of carers are female, married or cohabiting, and a minority are gainfully employed.They generally share a household with the person with dementia, or they live in the same municipality. In nearly all centers the majority of carers exhibit psychological and/or psychosomatic symptoms. In most regions participants make use of all elements of the support program (social club, discussion groups, informative meetings, consultation hour). The study shows that the support program based on the Amsterdam model meets general needs of people with dementia and their carers and is therefore generally applicable, but adaptive implementation is desirable.

摘要

在本研究中,我们调查了一项基于阿姆斯特丹痴呆症患者及其照料者会议中心模式的支持计划,是否符合荷兰其他地区的需求和可能性,或者该计划是否需要有所变化。本研究是对荷兰全国范围内会议中心实施情况的一项更大规模研究的一部分。基于问卷调查收集的数据显示,尽管区域间层面的支持服务几乎相同,但在发起者、场所类型、讨论小组和所有参与者月度会议的频率、工作人员背景、志愿者数量和结构性资金方面存在差异。在不同地区使用会议中心的痴呆症患者在性别、年龄、婚姻状况、痴呆严重程度和身体残疾方面没有显著差异。家庭照料者在区域间层面也表现出更多的相似性而非差异。在每个地区,大多数照料者为女性,已婚或同居,少数有工作。他们通常与痴呆症患者同住一个家庭,或者居住在同一个市镇。几乎在所有中心,大多数照料者都表现出心理和/或身心症状。在大多数地区,参与者利用了支持计划的所有要素(社交俱乐部、讨论小组、信息会议、咨询时间)。研究表明,基于阿姆斯特丹模式的支持计划满足了痴呆症患者及其照料者的一般需求,因此具有普遍适用性,但需要进行适应性实施。

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