Sullivan-Bolyai Susan, Grey Margaret, Deatrick Janet, Gruppuso Philip, Giraitis Pamela, Tamborlane William
Schools of Nursing, Yale University, New Haven, Connecticut
Schools of Nursing and Medicene, Yale University, New Haven, Connecticut
Diabetes Educ. 2004 May-Jun;30(3):476-84. doi: 10.1177/014572170403000319.
This study examined the feasibility of a postdiagnosis parent mentoring intervention for mothers of young children (1-10 years old) newly diagnosed with type 1 diabetes.
A mixed-method, prospective, randomized, controlled clinical trial design was used. Parent mentors (experienced mothers who have successfully raised young children with type 1 diabetes) and mother participants with young children newly diagnosed with type 1 diabetes were recruited from 2 regional pediatric diabetes centers. The mentors were trained to provide informational, affirmational, and emotional support using Ireys' modified parent mentor curriculum. During a 6-month trial, mentors provided home visits and phone call support to the mothers who were randomized to the experimental group. The control group had the option of receiving the intervention after the 6-month trial.
Mothers in the experimental group had fewer concerns, more confidence, identified more resources, and perceived diabetes having less of a negative impact on their family compared with mothers in the control group. Parent mentors provided important, practical day-to-day management information, reassurance, and emotional support during times of crises.
A postdiagnosis parent mentoring intervention for mothers of children with diabetes appears to be feasible and potentially effective.
本研究探讨了为新诊断出1型糖尿病的幼儿（1至10岁）母亲提供诊断后家长指导干预措施的可行性。
采用了混合方法、前瞻性、随机对照临床试验设计。从2个地区儿科糖尿病中心招募了家长指导者（成功抚养患有1型糖尿病幼儿的经验丰富的母亲）和新诊断出1型糖尿病的幼儿母亲参与者。指导者接受培训，使用艾雷斯修改后的家长指导课程提供信息、肯定和情感支持。在为期6个月的试验中，指导者对随机分配到实验组的母亲进行家访和电话支持。对照组可以选择在6个月的试验后接受干预。
与对照组母亲相比，实验组母亲的担忧更少、信心更强、找到的资源更多，并且认为糖尿病对其家庭的负面影响更小。家长指导者在危机时期提供了重要的、实用的日常管理信息、安慰和情感支持。
为糖尿病患儿母亲提供诊断后家长指导干预措施似乎是可行的，而且可能有效。
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