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母亲抚养1型糖尿病幼儿的经历。

Mothers' experiences raising young children with type 1 diabetes.

作者信息

Sullivan-Bolyai Susan, Deatrick Janet, Gruppuso Philip, Tamborlane William, Grey Margaret

机构信息

Yale University School of Nursing, New Haven, CT, USA.

出版信息

J Spec Pediatr Nurs. 2002 Jul-Sep;7(3):93-103. doi: 10.1111/j.1744-6155.2002.tb00158.x.

DOI:10.1111/j.1744-6155.2002.tb00158.x
PMID:12236249
Abstract

ISSUES AND PURPOSE

To examine the day-to-day experiences of mothers raising children 4 years of age and younger with type 1 diabetes.

DESIGN AND METHODS

The descriptive design compared mothers of children with (n = 25) and without diabetes (n = 25). Mother-child observations were completed for children with diabetes.

RESULTS

Mothers of children with diabetes are very skilled in reading their children's behavioral cues. Mothers' concerns included the fear of hypoglycemia and seizure activity, access to daycare centers, and babysitting services capable of caring for their children's condition. These responses significantly differed from the control group mothers.

PRACTICE IMPLICATIONS

Nurses can affirm that hypoglycemia-related fears are normal and help mothers identify community resources that might ease the burden of care required, especially during the early postdiagnosis period.

摘要

问题与目的

探讨抚养4岁及以下1型糖尿病患儿的母亲的日常经历。

设计与方法

描述性设计比较了患有糖尿病(n = 25)和未患糖尿病(n = 25)儿童的母亲。对患有糖尿病的儿童进行了母婴观察。

结果

患有糖尿病儿童的母亲非常善于解读孩子的行为线索。母亲们的担忧包括对低血糖和癫痫发作的恐惧、日托中心的可及性以及能够照顾孩子病情的保姆服务。这些回答与对照组母亲有显著差异。

实践意义

护士可以确认与低血糖相关的恐惧是正常的,并帮助母亲们找到可能减轻所需护理负担的社区资源,尤其是在诊断后的早期阶段。

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