Lindqvist Olav, Widmark Anders, Rasmussen Birgit H
Hemsjukvården-VIOOL, Skellefteå Hospital, Skellefteå, Sweden.
Cancer Nurs. 2004 May-Jun;27(3):237-43. doi: 10.1097/00002820-200405000-00010.
The disabling experience of fatigue suffered in connection with incurable cancer is an area within nursing that has generated only limited research interest. The need for a change in focus is presented in the literature: from treating the symptom itself to facilitating living with the fatigue caused by a life-threatening disease. This implies that helping to alleviate fatigue must start from the patients' own understanding and interpretation of this experience. Our study attempts to achieve this understanding through illuminating the meanings of fatigue as experienced by 4 patients with cancer in palliative care. The research interviews were analyzed using a phenomenological-hermeneutic approach inspired by the philosophy of Ricoeur. Our findings indicate a world in which one meaning of fatigue connected with incurable cancer is a lived bodily experience of approaching death. Comprehending fatigue in this way allows us to understand the paradoxes we found in the text, such as struggling in vain against fatigue, and hoping to overcome fatigue but expecting failure. The paradoxes represent a struggle between body and mind, between bodily experiences and intellectual understanding, and have important implications for how we communicate with patients about fatigue.
与无法治愈的癌症相关的疲劳所带来的致残体验,是护理领域中一个仅引起有限研究兴趣的领域。文献中提出了转变关注点的必要性:从治疗症状本身转向帮助患者应对由危及生命的疾病所引发的疲劳。这意味着缓解疲劳必须从患者自身对这种体验的理解和诠释开始。我们的研究试图通过阐明4名临终关怀中的癌症患者所经历的疲劳的意义来达成这种理解。研究访谈采用了受利科哲学启发的现象学 - 诠释学方法进行分析。我们的研究结果表明,在一个世界中,与无法治愈的癌症相关的疲劳的一种意义是临近死亡时身体的实际体验。以这种方式理解疲劳使我们能够理解我们在文本中发现的矛盾之处,例如徒劳地与疲劳作斗争,以及希望克服疲劳却又预期会失败。这些矛盾代表了身体与心灵之间、身体体验与理智理解之间的斗争,并且对于我们如何与患者就疲劳问题进行沟通具有重要意义。