测量癫痫患儿及其父母的耻辱感：工具开发与测试
Measuring stigma in children with epilepsy and their parents: instrument development and testing.
作者信息
Austin Joan K, MacLeod Jessica, Dunn David W, Shen Jianzhao, Perkins Susan M
机构信息
Indiana University School of Nursing, Indianapolis, IN 46202-5107, USA.
出版信息
Epilepsy Behav. 2004 Aug;5(4):472-82. doi: 10.1016/j.yebeh.2004.04.008.
PURPOSE
The goal of this work is to describe psychometric properties of two scales measuring perceived stigma in children with epilepsy and their parents.
METHODS
Data were collected for the parent scale in two samples: parents of 173 children with epilepsy and of 224 children with new-onset seizures. The child scale was tested in the chronic sample. Content validity, internal consistency reliability, and construct validity were tested.
RESULTS
Both scales had strong internal consistency reliability and construct validity. Higher scores were associated with greater seizure severity scores. In the parent scale, lower scores were associated with more positive mood, less worry, and more family leisure activities. In the child scale, higher scores were correlated with more negative attitude, greater worry, poorer self-concept, and more depression symptoms.
CONCLUSIONS
Both scales were found to have strong psychometric properties. They are short, and items are easy to understand. These scales have potential for use in research and in the clinical setting to measure stigma.
目的
本研究旨在描述用于测量癫痫患儿及其父母所感知到的耻辱感的两个量表的心理测量特性。
方法
在两个样本中收集了父母量表的数据：173名癫痫患儿的父母以及224名新发癫痫发作患儿的父母。儿童量表在慢性样本中进行了测试。对内容效度、内部一致性信度和结构效度进行了检验。
结果
两个量表都具有很强的内部一致性信度和结构效度。得分越高与癫痫发作严重程度得分越高相关。在父母量表中，得分越低与更积极的情绪、更少的担忧以及更多的家庭休闲活动相关。在儿童量表中，得分越高与更消极的态度、更多的担忧、更差的自我概念以及更多的抑郁症状相关。
结论
发现两个量表都具有很强的心理测量特性。它们简短，且条目易于理解。这些量表在研究和临床环境中具有测量耻辱感的潜力。
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