Parviniannasab Ali Mohammad, Dehghani Fateme, Bazyari Ahmadreza, Bazrafshan Mohammad-Rafi
Department of Nursing, School of Nursing, Larestan University of Medical Sciences, Larestan, Iran.
Larestan University of Medical Sciences, Larestan, Iran.
Iran J Psychiatry. 2025 Apr;20(2):145-156. doi: 10.18502/ijps.v20i2.18198.
Stigma exacerbates poorer life satisfaction among caregivers of children with epilepsy (CWE); however, the underlying reasons for this connection are still not fully understood. This research aimed to investigate how coping strategies and social support can impact the connection between stigma and life satisfaction. A cross-sectional descriptive study was conducted on 210 primary caregivers of CWE from August to November 2023. The participants were selected through convenience sampling. The study included information on participants' demographics (such as gender, age, education level, duration of epilepsy, age of onset, seizure frequency) and four established self-report questionnaires. Caregivers completed self-report scales of perceived social support, stigma, life satisfaction, and coping style. We used the PROCESS 4.1 macro proposed by Hayes to analyze the direct and indirect associations between variables. In addition, SPSS-27 software was used to conduct Pearson correlation. The research findings confirmed that both perceived social support and task-oriented coping mechanisms played a mediating role in the connection between stigma and life satisfaction (β perceived social support = -0.11; 95% bootstrap CI: -0.12 to -0.02; β task-oriented coping = -0.14; 95% bootstrap CI: -0.26 to -0.05), respectively. Furthermore, the results of serial mediation analyses revealed that the link between stigma and life satisfaction is influenced by perceived social support and task-oriented coping in a sequential process (B = -0.029, 95% bootstrapped CI: -0.060 to -0.006). These findings shed light on the role of perceived social support and task-oriented coping as serial mediators of the relationship between stigma and life satisfaction. Thus, identifying and correctly understanding the sources of support, as well as teaching effective task-oriented coping through mental health professionals, is necessary to reduce the stigma experienced by these caregivers and improve life satisfaction.
耻辱感会加剧癫痫患儿(CWE)照料者较低的生活满意度;然而,这种关联的潜在原因仍未完全明了。本研究旨在探究应对策略和社会支持如何影响耻辱感与生活满意度之间的关联。2023年8月至11月,对210名CWE的主要照料者进行了一项横断面描述性研究。参与者通过便利抽样选取。该研究涵盖了参与者的人口统计学信息(如性别、年龄、教育水平、癫痫病程、发病年龄、癫痫发作频率)以及四份已确立的自陈式问卷。照料者完成了关于感知到的社会支持、耻辱感、生活满意度和应对方式的自陈式量表。我们使用Hayes提出的PROCESS 4.1宏程序来分析变量之间的直接和间接关联。此外,使用SPSS - 27软件进行Pearson相关性分析。研究结果证实,感知到的社会支持和任务导向型应对机制在耻辱感与生活满意度之间的关联中均起到中介作用(β感知到的社会支持 = -0.11;95%自抽样置信区间:-0.12至-0.02;β任务导向型应对 = -0.14;95%自抽样置信区间:-0.26至-0.05)。此外,系列中介分析结果显示,耻辱感与生活满意度之间的联系在一个连续过程中受到感知到的社会支持和任务导向型应对的影响(B = -0.029,95%自抽样置信区间:-0.060至-0.006)。这些发现揭示了感知到的社会支持和任务导向型应对作为耻辱感与生活满意度关系的系列中介的作用。因此,识别并正确理解支持来源,以及通过心理健康专业人员传授有效的任务导向型应对方法,对于减少这些照料者所经历的耻辱感并提高生活满意度是必要的。