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在互联网迷宫中搜索人工耳蜗信息:对家长和专业人士的启示

Searching for cochlear implant information on the internet maze: implications for parents and professionals.

作者信息

Zaidman-Zait Anat, Jamieson Janet R

机构信息

University of British Columbia, Department of Educational and Counseling Psychology, and Special Education, Vancouver, Canada.

出版信息

J Deaf Stud Deaf Educ. 2004 Fall;9(4):413-26. doi: 10.1093/deafed/enh046.

DOI:10.1093/deafed/enh046
PMID:15314015
Abstract

The present study has three purposes: (a) to determine who disseminates information on cochlear implants on the Web; (b) to describe a representative sample of Web sites that disseminate information on cochlear implants, with a focus on the content topics and their relevance to parents of deaf children; and (c) to discuss the practical issues of Web-based information and its implications for professionals working with parents of deaf children. Using the terms "cochlear implants" and "children," the first 10 sites generated by the four most popular search engines (Google, Yahoo, Microsoft's MSN, and America Online) at two points in time were selected for analysis, resulting in a sample of 31 Web sites. The majority of Web sites represented medically oriented academic departments and government organizations, although a wide variety of other sources containing information about cochlear implants were also located. Qualitative analysis revealed that the content tended to fall into eight categories; however, the important issues of educational concerns, habilitation following surgery, and communication methods were either addressed minimally or neglected completely. Using analytical tools that had been developed to evaluate "user friendliness" in other domains, each Web site was assessed for its stability, service/design features and ease of use. In general, wide variability was noted across the Web sites for each of these factors. The strong recommendation is made that professionals understand and enhance their knowledge of both the advantages and limitations of incorporating the new technology into their work with parents.

摘要

本研究有三个目的

(a) 确定谁在网络上传播有关人工耳蜗的信息;(b) 描述传播人工耳蜗信息的网站的一个代表性样本,重点关注内容主题及其与失聪儿童家长的相关性;(c) 讨论基于网络的信息的实际问题及其对与失聪儿童家长打交道的专业人员的影响。使用 “人工耳蜗” 和 “儿童” 这两个术语,在两个时间点从四个最受欢迎的搜索引擎(谷歌、雅虎、微软的MSN和美国在线)生成的前10个网站中选取进行分析,得到一个31个网站的样本。尽管还找到了各种各样其他包含人工耳蜗信息的来源,但大多数网站代表的是医学导向的学术部门和政府组织。定性分析表明,内容往往分为八类;然而,教育问题、术后康复和沟通方法等重要问题要么很少涉及,要么完全被忽视。使用在其他领域开发的用于评估 “用户友好性” 的分析工具,对每个网站的稳定性、服务/设计特点和易用性进行了评估。总体而言,这些因素在各个网站上的差异都很大。强烈建议专业人员了解并增强他们在与家长合作中运用这项新技术的优势和局限性的知识。

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引用本文的文献

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What Do People Want to Know About Cochlear Implants: A Google Analytic Study.人们想了解关于人工耳蜗的哪些方面:一项谷歌分析研究。
Laryngoscope. 2025 Feb;135(2):840-847. doi: 10.1002/lary.31741. Epub 2024 Aug 27.