Walling Anne M, Maliski Sally, Bogorad Alex, Litwin Mark S
Department of Urology, David Geffen School of Medicine, University of California, Box 951738, Los Angeles, CA 90095-1738, USA.
Patient Educ Couns. 2004 Sep;54(3):337-43. doi: 10.1016/j.pec.2003.10.005.
Providing care for men with prostate cancer is particularly challenging because of the controversy surrounding screening and the paucity of randomized control trials comparing treatments. Therefore, a patient's personal preferences, and adequate patient education become central to well-informed medical decision-making. Acknowledging the need for high quality education materials for men with prostate cancer, we developed and pilot tested a measure to assess the completeness and accuracy of available materials. The measure rates materials on their inclusion and accuracy of the primary knowledge base a patient should acquire before deciding on prostate cancer screening or treatment, to prepare for staging, and to manage treatment and disease-related symptoms. We found that many available prostate cancer education materials are factually accurate, but omit information that is important and relevant to patients with prostate cancer.
由于围绕前列腺癌筛查存在争议，且比较各种治疗方法的随机对照试验较少，为前列腺癌男性患者提供护理极具挑战性。因此，患者的个人偏好以及对患者进行充分的教育成为做出明智医疗决策的核心。认识到需要为前列腺癌男性患者提供高质量的教育材料，我们开发并进行了一项试验性测试，以评估现有材料的完整性和准确性。该测试根据患者在决定进行前列腺癌筛查或治疗、为分期做准备以及管理治疗和疾病相关症状之前应掌握的主要知识库内容的涵盖情况和准确性对材料进行评分。我们发现，许多现有的前列腺癌教育材料在事实上是准确的，但遗漏了对前列腺癌患者重要且相关的信息。
