Coyle Nessa, Sculco Lois
Department of Neurology, Pain and Palliative Care Service, Memorial Sloan-Kettering Cancer Center, 1275 York Avenue, New York, NY 10021, USA.
J Support Oncol. 2003 Sep-Oct;1(3):206-15.
All interaction between patient and medical team is mediated through communication. In working with advanced cancer patients, troubled communication between the patient and healthcare team is sometimes evident. The current study examined the perspective of seven advanced cancer patients on this communication. The patients were under the care of an urban cancer research center, and each had expressed, at least once, a desire for hastened death. Using a phenomenological form of inquiry, serial, "in-depth semistructured" interviews were conducted (mean = 3; range = 2-6) at a place convenient to the patient. The interviews were audiotaped, transcribed, coded, and organized into themes. The study findings suggest that the most important aspects of communication between the advanced cancer patient and medical team at an urban cancer research center are the extreme vulnerability of the patient to both style and content of the communication; the extreme sensitivity of the communication itself, because it concerns issues vital to the patient; and the complexity of the communication, encompassing and expressing both verbal and non-verbal messages, as well as intended and unintended messages. Conflict inherent in almost all communication between patient and medical team involved disagreement about goals of care and the participants' perception of not being treated with respect. Harm caused to the participant by communication missteps included loss of hope, a sense of abandonment, and diminished feelings of personal dignity and worth. The findings may not be representative of advanced cancer patients being cared for in a different treatment setting.
患者与医疗团队之间的所有互动都是通过沟通来实现的。在与晚期癌症患者打交道时,患者与医疗团队之间存在的沟通问题有时很明显。当前的研究考察了七名晚期癌症患者对这种沟通的看法。这些患者由一家城市癌症研究中心负责照料,并且每个人都至少表达过一次对加速死亡的渴望。采用现象学的探究形式,在方便患者的地点进行了系列“深入半结构化”访谈(平均访谈次数 = 3次;范围为2 - 6次)。访谈进行了录音、转录、编码,并归纳为主题。研究结果表明,在城市癌症研究中心,晚期癌症患者与医疗团队之间沟通的最重要方面包括:患者对沟通方式和内容极度脆弱;沟通本身极度敏感,因为它涉及对患者至关重要的问题;以及沟通的复杂性,涵盖并表达了言语和非言语信息,以及有意和无意的信息。患者与医疗团队之间几乎所有沟通中固有的冲突涉及对护理目标的分歧以及参与者感觉未得到尊重。沟通失误给参与者造成的伤害包括希望破灭、被遗弃感以及个人尊严和价值感的降低。这些研究结果可能并不代表在不同治疗环境中接受护理的晚期癌症患者的情况。