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临终关怀决策中的伦理、态度与实践:欧洲视角

Ethics, attitude and practice in end-of-life care decision: an European perspective.

作者信息

Nava S

机构信息

Respiratory Unit, "Salvatore Maugeri" Foundation IRCCS, Scientific Institute of Pavia, Italy.

出版信息

Monaldi Arch Chest Dis. 2004 Jan-Mar;61(1):50-7.

PMID:15366337
Abstract

Only in the last decade in Europe has there been increased attention dedicated to the end-of-life care in the hospital, especially in the Intensive Care Unit (ICU). The definitions of the potential decision are extremely important. Withholding is a planned decision not to institute therapies that were otherwise warranted, Withdrawal is the discontinuation of treatments that had been started, Terminal sedation consists of pain and symptom treatment with the possible side effect of shortening life, while Euthanasia means that a doctor is intentionally killing a person who is suffering unbearably and hopelessly at the latter's explicit informed request. The overall incidence of these practices in Europe is only partially known, but there are important differences between Countries or regions, reflecting the absence of a common strategy even within the European Community. Only <15% of ICU patients retain decision making capacity, allowing the impossibility of discussing the decision with them. It is rare that the patient's family is involved in the decision and when such case does arise, the relatives rate the communication with hospital staff poor. The "shared decision" taken together by physicians, nurses, and the patient's family may be the best approach for end-of-life decision, therefore common European guidelines are needed.

摘要

仅在过去十年中,欧洲才越来越关注医院中的临终关怀,尤其是在重症监护病房(ICU)。潜在决策的定义极为重要。“ withholding”(放弃治疗)是一项有计划的决策,即不采取原本有必要的治疗措施;“ withdrawal”(撤销治疗)是指停止已经开始的治疗;“终末期镇静”包括对疼痛和症状的治疗,可能会有缩短生命的副作用;而“安乐死”则意味着医生应患者明确的知情请求,故意杀死一个正遭受无法忍受的痛苦且毫无希望的人。这些做法在欧洲的总体发生率仅部分为人所知,但不同国家或地区之间存在重要差异,这反映出即使在欧洲共同体内部也缺乏共同的策略。只有不到15%的ICU患者具备决策能力,这使得无法与他们讨论决策。患者家属很少参与决策,而当这种情况出现时,亲属对与医院工作人员的沟通评价很差。由医生、护士和患者家属共同做出的“共同决策”可能是临终决策的最佳方法,因此需要欧洲通用的指导方针。

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