Simons William W, Mandl Kenneth D, Kohane Isaac S
Children's Hospital Informatics Program, Enders 1, 300 Longwood Avenue, Boston, MA 02115, USA.
J Am Med Inform Assoc. 2005 Jan-Feb;12(1):47-54. doi: 10.1197/jamia.M1592. Epub 2004 Oct 18.
Despite progress in creating standardized clinical data models and interapplication protocols, the goal of creating a lifelong health care record remains mired in the pragmatics of interinstitutional competition, concerns about privacy and unnecessary disclosure, and the lack of a nationwide system for authenticating and authorizing access to medical information. The authors describe the architecture of a personally controlled health care record system, PING, that is not institutionally bound, is a free and open source, and meets the policy requirements that the authors have previously identified for health care delivery and population-wide research.
尽管在创建标准化临床数据模型和应用程序间协议方面取得了进展,但创建终身医疗记录的目标仍深陷机构间竞争的实际问题、对隐私和不必要披露的担忧,以及缺乏全国性的医疗信息认证和授权访问系统的困境之中。作者描述了一个个人控制的医疗记录系统PING的架构,该系统不受机构约束,是免费的开源系统,并且符合作者先前确定的医疗服务和全人群研究的政策要求。