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[交通事故后的颅脑创伤:患者、家属、医生及专业人员的认知]

[Cranial-cerebral trauma after a traffic accident: perceptions of patients, family, physicians and professionals].

作者信息

Lefebvre Hélène, Pelchat Diane, Swaine Bonnie, Gélinas Isabelle, Levert Marie Josée

机构信息

Faculté des sciences infirmieres Université de Montréal.

出版信息

Rech Soins Infirm. 2004 Sep(78):14-34.

Abstract

This is a study of medical care when road accident incidents result in traumatic brain injury (TBI). We investigated the personal perceptions of those involved in acute care episodes and subsequent rehabilitation. We conducted simultaneous semi-structured interviews with individuals who had sustained a TBI (8) and their families (8). We then conducted semi-structured individual interviews with the professionals (22) and physicians (9) who attended them. Results reveal the difficulties encountered by the different people involved, from the standpoint of the rehabilitation of both the person who with the TBI and their families, the relationships among the various actors, and the continuity of care. The results disclose the importance of including the family and the TBI casualty in the care process by endorsing their participation and by setting up suitable structures that prioritize a meaningful partnership among the individuals, families, physicians, professionals and health care organizations and in which each person can play a role as an agent in the care of the person with the TBI. An important element, which came out again in our results, is that the shortage of information provided to the families can jeopardize establishing a relationship of trust among the actors. Furthermore, many of the family members were upset that the health intervention was entirely focussed on the TBI casualty: none of the professionals were concerned with what the families were going through, either during the acute care or rehabilitation. Another major problem is lack of communication, not just amongst the professionals, but also between institutions which seem to function in isolation. Lack of resources, the limited availability of those that are offered, and social policies are also detrimental to the reintegration of the TBI individual into the community. Finally, many of the professionals reported that they had not been trained to assist families in this situation.

摘要

这是一项关于道路交通事故导致创伤性脑损伤(TBI)时医疗护理情况的研究。我们调查了参与急性护理阶段及后续康复过程的人员的个人看法。我们同时对8名脑外伤患者及其8名家属进行了半结构化访谈。然后,我们对参与护理的22名专业人员和9名医生进行了半结构化的个人访谈。结果揭示了从脑外伤患者及其家属康复的角度、不同行为主体之间的关系以及护理连续性等方面来看,不同相关人员所遇到的困难。结果还表明,通过认可家庭和脑外伤患者的参与,并建立合适的架构,让个人、家庭、医生、专业人员和医疗保健组织之间形成有意义的伙伴关系,且每个人都能在脑外伤患者的护理中发挥作用,将家庭和脑外伤患者纳入护理过程是非常重要的。我们的研究结果再次凸显的一个重要因素是,向家属提供的信息不足可能会破坏各行为主体之间信任关系的建立。此外,许多家属感到不满的是,健康干预完全集中在脑外伤患者身上:在急性护理或康复期间,没有一名专业人员关心家属的经历。另一个主要问题是缺乏沟通,不仅专业人员之间缺乏沟通,各机构之间似乎也各自为政。资源短缺、所提供资源的有限可用性以及社会政策也不利于脑外伤患者重新融入社区。最后,许多专业人员报告称,他们没有接受过在这种情况下协助家庭的培训。

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