Franzoi A C, Araújo A Q C
The Federal University of Rio de Janeiro (UFRJ), Clementino Fraga Filho University Hospital (HUCFF), Rio de Janeiro, Brazil.
Spinal Cord. 2005 Apr;43(4):236-40. doi: 10.1038/sj.sc.3101677.
Survey.
To determine the disability profile of a group of patients with human T-cell lymphotropic virus type I-associated myelopathy/tropical spastic paraparesis (HAM/TSP), using the Functional Independence Measure (FIM) to identify the most affected functional areas.
Reference center for HTLV Rio de Janeiro, Brazil.
A total of 72 patients (49 female and 23 male), consecutively referred by tertiary care centers, were assessed using the FIM.
The average FIM score was 108 (+/-12 SD) ranging from 58 to 122. The lowest items scores were obtained in locomotion and bladder management. When divided into two groups (above, and below or equal to the average score), there were significant differences (P<0.05) in age at time of assessment, in the degree of muscular power and in low back pain. There were no significant differences in terms of age of onset and duration of the disease.
The most affected areas in FIM motor items were locomotion (walk and stairs) and bladder management. Age, strength in lower limbs and low back pain interfere with functional activities in patients with HAM/TSP. The duration of the disease is not a significant factor for patient disabilities. The goals of rehabilitation in HAM/TSP patients should target the modifiable factors, such as pain, strength and the neurogenic bladder.
调查。
使用功能独立性测量（FIM）来确定一组与I型人类嗜T细胞病毒相关的脊髓病/热带痉挛性截瘫（HAM/TSP）患者的残疾情况，以识别受影响最严重的功能领域。
巴西里约热内卢的HTLV参考中心。
对三级护理中心连续转诊的72例患者（49例女性和23例男性）使用FIM进行评估。
FIM平均得分为108（±12标准差），范围为58至122。运动和膀胱管理项目得分最低。分为两组（高于平均分和低于或等于平均分）后，评估时的年龄、肌肉力量程度和腰痛方面存在显著差异（P<0.05）。发病年龄和病程方面无显著差异。
FIM运动项目中受影响最严重的领域是运动（行走和上下楼梯）和膀胱管理。年龄、下肢力量和腰痛会影响HAM/TSP患者的功能活动。病程不是患者残疾的重要因素。HAM/TSP患者的康复目标应针对可改变的因素，如疼痛、力量和神经源性膀胱。
