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脊髓损伤患者的互联网使用模式及其与健康相关生活质量的关系。

Patterns of Internet use by persons with spinal cord injuries and relationship to health-related quality of life.

作者信息

Drainoni Mari-Lynn, Houlihan Bethlyn, Williams Steve, Vedrani Mark, Esch David, Lee-Hood Elizabeth, Weiner Cheryl

机构信息

Boston University School of Public Health, New England Spinal Cord Injury Center, MA, USA.

出版信息

Arch Phys Med Rehabil. 2004 Nov;85(11):1872-9. doi: 10.1016/j.apmr.2004.07.350.

DOI:10.1016/j.apmr.2004.07.350
PMID:15520984
Abstract

OBJECTIVES

To examine patterns of computer and Internet use among persons with spinal cord injuries (SCI) and to assess the relationship between Internet use and health-related quality of life (HRQOL).

DESIGN

Cross-sectional survey design.

SETTING

National Model Spinal Cord Injury Systems.

PARTICIPANTS

People with SCI enrolled in a national database.

INTERVENTIONS

Not applicable.

MAIN OUTCOME MEASURES

Patterns of Internet use and relationship to HRQOL indicators: self-perceived health status, health status compared with 1 year ago, severity of depression, social integration score, occupation score, contacts with friends, business contacts, and satisfaction with life.

RESULTS

Most subjects owned computers, had Internet access, and used the Internet regularly-primarily for email, disability and health information, and shopping. Bivariate analysis revealed significant differences in Internet access based on sociodemographics, particularly among subjects with less education and among African Americans and Hispanics. In initial univariate analysis, most HRQOL indicators were significantly better for Internet users; once sociodemographic factors were included, 4 indicators remained significant.

CONCLUSIONS

Complex factors contribute to Internet access among people with SCI, with more barriers among specific subgroups. A significant HRQOL benefit from Internet use is suggested. Targeted interventions and studies of usage patterns are recommended.

摘要

目的

研究脊髓损伤(SCI)患者的计算机和互联网使用模式,并评估互联网使用与健康相关生活质量(HRQOL)之间的关系。

设计

横断面调查设计。

地点

国家脊髓损伤示范系统。

参与者

纳入国家数据库的SCI患者。

干预措施

不适用。

主要观察指标

互联网使用模式及其与HRQOL指标的关系:自我感知健康状况、与1年前相比的健康状况、抑郁严重程度、社会融合得分、职业得分、与朋友的联系、业务联系以及生活满意度。

结果

大多数受试者拥有计算机、能够访问互联网并经常使用互联网,主要用于电子邮件、残疾和健康信息以及购物。双变量分析显示,基于社会人口统计学因素,互联网接入存在显著差异,尤其是在受教育程度较低的受试者以及非裔美国人和西班牙裔受试者中。在最初的单变量分析中,大多数HRQOL指标在互联网用户中显著更好;纳入社会人口统计学因素后,有4个指标仍然显著。

结论

多种复杂因素影响SCI患者的互联网接入情况,特定亚组面临的障碍更多。研究表明使用互联网对HRQOL有显著益处。建议开展有针对性的干预措施和使用模式研究。

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